Lobular carcinoma in-situ
Today finally found out the I've a lobular carcinoma in-situ in my right breast. I've booked in for surgery on 20th October for right breast - dcis in-situ & right breast lobular carcinoma in-situ. I'll have a wire inserted by biopsy for surgery to mark the areas with magnetic markers. Afterwards 3 weeks radiation & hormone tablets. Im nervous about lobular carcinoma as I've read it can spread quicker then dcis. We're going away 5 weeks then straight into op Im not sure if this result is good or bad with lobular carcinoma or not Love to hear from other persons experiences. Huppy
DCIS lumpectomy yesterday
Hi yall, so glad this service is available. Just had my lumpectomy yesterday and feeling the blues. Biopsy results next week, hoping for the best, expecting anything. It seems that radiotherapy is likely, which I had hoped wouldn't have to happen. It will take over my plans for weeks!!! I am struggling with social isolation following leukemia with immunity issues followed up by a bad dose of covid last year. Was just starting to get it together then this happened!!! Feeling like a lightning rod for cancer atm. So really this is probably small potatoes in the scheme of things, but still not really what I had planned. Appreciate any input.Surgery and tail-end of a cold?
Hi everyone - I had a lumpectomy three weeks ago after a high grade DCIS diagnosis. Was due to go back last week for a re-excision to ensure clear margins but I’d caught a monster cold in the meantime. Surgery is now scheduled for Tuesday- I still have a bit of congestion and a bit of a cough which I think is post-viral. Has anyone been in the same situation? Is it likely to be postponed? On a completely side note, thank you all for being here and sharing advice and stories. It does make me feel less isolated. I’m 65 and my husband has been super-solid but he’s prone to extreme positivism which can be great but sometimes isn’t. We live with my 94 year old mother who quite probably doesn’t remember what’s going on. This would all feel very lonely without this online network.
Can't stop thinking about bad outcomes
Newly diagnosed ++- and scheduled for lumpectomy in 2 weeks followed by radiation if all goes to plan. I'm having intrusive obsessive thoughts about death, particularly dying during the surgery and what my funeral will be like. It's non stop and exhausting and I'm neglecting everything else. I've put together an 'instruction manual' for my husband so he knows how to look after our autistic son properly. Are these thoughts premonitions or just underlying fear? I want it all to stop!
Suggestions/Experience
Hi everyone, I’m looking for some advice or experiences from others who might have faced a similar situation. I was recently diagnosed with invasive carcinoma grade 1 and have undergone a lumpectomy with sentinel node biopsy. The surgery also removed areas of DCIS, and thankfully, the pathology report shows that all margins are clear. However, the report also found extensive LCIS (lobular carcinoma in situ), and now my doctor has presented me with two options moving forward: Undergo a double mastectomy to reduce future risk Or opt for regular screenings every 6 months for the rest of my life (mammograms, MRIs, etc.) I need to make this decision before starting radiation, and I’m feeling really torn. A mastectomy is obviously a big step, but ongoing screenings come with their own stress and uncertainty too. If anyone has had to choose between these options, or has any advice, experiences, or perspectives to share, I’d be really grateful to hear from you. Thank you
Decision
I have been diagnosed a second time the first was DCIS 3.5yrs ago, had a lumpectomy without radiation or chemo. Cancer has now returned in the milk duct 2mm. I am having surgery soon was given choice of total mastectomy or total nipple and aerola removal. His recommendation was mastectomy, I have chosen the later. Now wondering if I was offered radiation after the first surgery would I be in this situation now. Also not recommended for radiation after this current one. Not sure if I have made the right decision.Indecisive
I am new to this group and beginning my journey. It is very reassuring to feel I can learn from other members experiences. Knowing that everyone’s situation is different and I am beginning to appreciate that there are a number of decisions ahead of me regarding treatment options. i was recently diagnosed with mass-forming, high-grade DCIS of the left breast. The mammogram detected a single 14mm lesion and an ultrasound detected a corresponding mass. So I understand that this is considered small in size. No hormone marker testing was performed on the biopsied tissue. I have been scheduled for a wide excision next week and my surgeon has given me two options: either have a sentinel lymph node biopsy at the time of the surgery, or wait until the histopathology report is back (after surgery) and then later do the sentinel lymph node biopsy if any invasive cancer is detected. I am having difficulty making a decision. I appreciate that if the biopsy is performed next week (whilst the excision is performed), I only then have one anaesthetic but if I choose the second option, I may avoid unnecessary loss of lymph nodes. Wondering if any other members diagnosed with a small high-grade DCIS have been given this choice and if so, what did you decide?
Post surgery changes
Good morning, I have a quick question to any women who have had lumpectomy/s and where the surgeon removed fat from under the underarm area right side only for me (side boob) to refill breast/s. I had lumpectomy's on both breasts at the same time, early cancers, both hormone positive ILC & IDC over a year ago now. My question is if they have been left with what looks like a small 3rd boob to me under their armpit that protrudes out. I cant understand how an area that has fat removed from it ends up bigger than before. It is uncomfortable, causes rubbing/friction that I did not have to contend with before and finding a bra that covers the area so the excess bulk doesn't get squeezed out from and overhangs from the bra line is frustrating. I only have B-Cup breasts and never had to wear heavy duty thick/wide band bras before because I wasn't big or had a lot of fat in the side boob area. Since surgery & having the fat apparently removed to fill the area my small tumours were removed from, I am now left with a bulge that is very noticeable from both the front & back. I dont wear singlet tops any more because the bulge is too noticeable. Very disappointing because I was not told about this outcome, only that there will be scar/s, which I have & don't concern me at all. Having a bulge/mass sticking out from the side of your breast seems more notable to mention than whatever scars might be left behind. Had I known I would not have had my breasts "refilled" from the small tumours removed. Any lop-sidedness or unevenness if any would have been fixed with a bit of padding, which most bras come with these days. I feel I have acquired a 3rd boob that is very noticeable whether I am clothed or not. Has this been any one else's experience?
Lumpectomy vs mastectomy
Hey everyone, I finished chemo on the 4/4 and right after the Easter long weekend I was kind of ambushed with an early surgical appointment to sign the consent forms for surgery. I didn’t have my normal support person (my sister) with me and I don’t know how I feel about my decision. To give some context, when I was first diagnosed in October last year my opinion regarding treatment was to go hard and fast and just kill this damned thing so I can move on with my life. The surgeon wanted to initially do a lumpectomy and I refused and asked for a mastectomy. Then on a subsequent appointment once I had gone and done some research I asked the surgeon if he wanted to do a lumpectomy because I was going to have radiation and he said yes, that is would protect my lung tissue to keep the breast tissue. I then asked if I could have a mastectomy after and he said yes. Then in my previous appointment before Easter he said mastectomy and not lumpectomy, and there was a bit of confusion (and I felt I was being gaslit, not a term I use lightly) as I reminded him of what had been discussed previously and he told me I wasn’t in the right frame of mind to be making decisions (I am struggling mentally but with other issues, not the treatment plan as I understood it). So when I got to this new appointment, I tried to explain what had gone on and asked what my MDT had decided. The registrar I saw said they recommended a lumpectomy and clearance of 9 lymph nodes. The way he explained it to me was that it was better they take the most minimally invasive path as I wouldn’t likely get skin and nipple conserving mastectomy. That it was better to take a little with the option of more later rather than taking it all when it’s not considered necessary. I signed the forms at the time after stipulating that if I wanted one later that they could do that and he said without cancer it would be a low priority but yes. A week after this and I don’t know if the decision is sitting right with me- those who have had the lumpectomy and axilla clearance, how did you feel? And did you need to go back later and have revision surgery to take more margins or have the full mastectomy?
A MUST READ IF FACING MASTECTOMY EARLY BREAST CANCER DIAGNOSIS DCIS LCIS
I am writing this letter in the hope that the following story will help anyone facing a mastectomy or an early diagnosis of breast cancer. Women are being diagnosed with breast cancer every day and not all of them are provided with the information required to make informed decisions. A 42 year old mother of one is diagnosed with early breast cancer at a Brisbane Breast Clinic, August 2013. After receiving her diagnosis from a doctor at the centre she is advised by the doctor to make an appointment with her General Practitioner to attain a referral for a surgeon to have the cancer removed. Her referred surgeon performs a lumpectomy and then suggests the best treatment option for her cancer is mastectomy. She believes she has all information required to make a decision and elects to have a mastectomy four days later. SHE HAS THE RIGHT TO A BREAST RECONSTRUCTION AT THE SAME TIME AS MASTECTOMY. SHE HAS THE RIGHT TO A SKIN SPARING MASTECTOMY. SHE IS A POSSIBLE CANDIDATE FOR A NIPPLE SPARING MASTECTOMY. BUT SADLY SHE IS NEVER TOLD! This is the true story of my friend Lisa. She is currently enduring the emotional suffering caused by not being fully informed of her options. I now know that this is not an isolated case as I know many more women are having this same experience in Australia. Six weeks after Lisa's surgery I too went to the same Brisbane Breast Clinic to have a mammogram. I am a 38 years old mother of two, I had no known symptoms or lumps and no strong family history. Lisa's story saved my life. I was diagnosed by the same doctor with early breast cancer and advised to seek a referral from a General Practitioner. Through this experience I discovered that we currently have surgeons in Australia who are using advanced and accepted techniques like skin sparing and nipple sparing mastectomy that can effectively treat cancer without disfigurement. Both types of surgery combined with reconstruction are helping women preserve their breasts in a way that improves their quality of life after receiving a breast cancer diagnosis. I also learnt that the REFERRAL LETTER was the key determinant on whether or not I would be informed of my options. My first treatment recommendation from a surgeon was mastectomy with no reconstruction. A breast reconstruction, Skin sparing and nipple sparing mastectomy were not an option at the same time as mastectomy. My second treatment recommendation offered by a different surgeon was mastectomy with immediate reconstruction, skin sparing and nipple sparing mastectomy. How could two surgeons in Australia have such vast differences in approach to the treatment of early breast cancer and why didn't anyone tell me? I have leant that not all surgeons in Australia are trained nor practice the latest procedures that are widely accepted and used in Europe and America for the treatment of breast cancer. Receiving a diagnosis of breast cancer is one of the toughest moments a women will experience. You feel compelled to make quick decisions. Hence, I can't believe more guidance is not provided when first diagnosed to enable women to select surgeons based on known treatment alternatives. That's why it is so important to have complete, up to date information and know all of your options before you consent to any type of surgery. You are entitled to ask questions. Your breast care nurse will not tell you about known treatment options, nor can they tell you which surgeon to go to - they are not allowed. But if you want to know who performs skin sparing or nipple sparing surgery ask them and they will tell you. If you don't get the answers you need on a particular procedure then keep pushing for information. Keep searching for the information you need until you get the information you beleive that you need to make a decision. On August 17th, 2010 a new law was passed in New York to ensure that breast cancer patients from all socioeconomic groups are informed about their options regarding breast reconstruction. The law mandates that all women are informed, prior to undergoing a mastectomy, about their right to reconstruction and the types of reconstructions that are available, even if this means referring women to another facility or hospital system. This bill went into effect Jan 2011 and already other states are following with similar legislation. Breast cancer patients are being informed of their options and told where to get the procedures they prefer. Surely, in Australia we do not need to legislate or pass a new law to inform women with breast cancer of their options. It's a fact that in Australia, around 5000 women have a mastectomy every year, but only 6% to 12% of these go on to have reconstructions. This compares with 42% of women in the US and 16.5% in England. We need to ask ourselves - is this because when diagnosed with breast cancer women are not being informed and empowered to know all of their treatment options in order to make informed decisions. After being throgh this experience I hope that this information will help anyone who is facing a mastectomy. If you are facing a mastectomy get a second opinion and consult with a plastic surgeon as well as a breast cancer oncologist. Every women deserves to know there options and I am disgusted that women will continue to be blind sighted by certain surgeons, nurses and doctors who do not feel compelled to tell women about certain types of reconstructive surgery. If you are in a remote area of Australia my heart goes out to you. If you are facing a mastectomy it is in your best interest to see a Breast Cancer Oncologist who specialises in Breast Cancer in your nearest city. Knowledge is power. I wish anyone facing a breast cancer diagnosis all the best and I hope that I can prevent what happened to my friend Lisa from happening to anybody else.
