Seeking your topic suggestions for our upcoming conferences
Hi everyone We are starting to plan our conferences for next year, at this stage they will be in Darwin and Perth. As we are in the program development stage, we are seeking your suggestions and local knowledge! Please let me know of any topic ideas, general feedback or local knowledge you have that may assist with our program development. Thanks, Laura571Views1like25CommentsAsk the Expert: Triple Negative Early Breast Cancer with Dr Nick Zdenkowski
Good afternoon everyone, On the 17th of February, we will be hosting an interactive digital event on triple negative, please see details below. Triple negative breast cancer accounts for approximately 15 per cent of all breast cancers and refers to a type of breast cancer that does not have any of the three receptors commonly found in breast cancer cells – the oestrogen, progestogen and HER2 receptors. Although triple negative breast cancer does not respond to hormone-blocking therapy or medicines that target HER2 protein receptors, chemotherapy is often used to successfully treat this form of breast cancer, with active research taking place to improve treatments to better target triple negative breast cancer. We will hear from Medical Oncologist Nick Zdenkowski who has a special interest in the care of patients with breast cancer and offers the latest medical oncology treatments. Additionally, we will also hear from BCNA consumer representative Emma Warnecke. This Ask the Expert session will address what triple negative is including the different subtypes, the current treatments available and the outcomes including risk of recurrence, genetic testing and implications and the clinical research trials and how to access them. This 60-minute Zoom event is primarily interactive and after a short presentation, viewers will be able to ask questions to both Nick and Emma. Please share your questions prior to the event via the question box on the registration page, email events@bcna.org.au or during the evening via the discussion box on your screen. If you wish to attend this event anonymously, please review the steps below: All cameras will be automatically turned off when you enter the event Questions can be asked prior to and during the event via the chat or audio function. If you wish to remain anonymous, we recommend using the chat function only If you wish for your name not to be shown during the event (via the chat, attendee list and camera name), please click here. This link will show you how to join the Zoom meeting anonymously If you’re unable to alter your name prior to the Zoom event, please click here. This link will show you how you can update your name on the night of the event If you’re unable to edit your name via both the links above, please reach out to a BCNA staff member via the chat function on the night of the event and we can edit it for you manually Any questions regarding your attendance, please email events@bcna.org.au for further assistance. Register for the webcast here. Event Details Date: Thursday 17 February 2022 Time: 6.00pm - 7.00pm AEDT Where: Online – from your computer, tablet, or laptop Your Local Time: WA: 3.00pm NT: 4.30pm SA: 5.30pm QLD: 5.00pm ACT, NSW, TAS, VIC: 6.00pm391Views0likes9CommentsManaging the cost of breast cancer webcast: tips and resources 16th Sept 7-8pm AEST
Hi everyone, BCNA are holding a webcast on Thursday 16 September, 7:00 pm – 8:00 pm AEST on managing the cost of breast cancer: tips and resources. For many people with breast cancer, the financial costs associated with treatment and care can be substantial. General day-to-day expenses continue, while you may also have to pay for specialist appointments, tests and scans, medicines and other treatments, counselling, travel and so on. If you're unable to continue in paid work, the loss of income can also contribute to financial pressure on you and your family. Even when treatment is finished, you may still struggle financially, or you may face the longer-term impacts of ongoing care. For some people, getting by financially is no easy task, even at the best of times. Money worries can have a big impact on how you and your family cope. Informed financial consent requires people to have information about costs and support to make informed decisions about their care. We will hear from Financial Counsellor at Cancer Council Victoria, Antony Mitchell who has a community focus and experience with working with a number of not for profits, and BCNA Consumer Representative Jodie Lydeker who was diagnosed with invasive breast cancer 3 years ago, and detected again in 2021. Jodie will share insight into her lived experience of the financial stress associated with the disease. In this webcast we will explore managing the costs of breast cancer including informed financial consent, public vs private healthcare, hidden and common out-of-pocket costs, questions to ask your healthcare provider, financial wellbeing, career impacts, issues for those who live in rural and remote areas and the resources and support available to you. To register, please follow this link, https://www.bcna.org.au/webcasts-new/managing-the-cost-of-breast-cancer-webcast-tips-and-resources/ Event Details When: Thursday, 16 September 2021 What Time: 07:00 PM AEST - 08:00 PM AEST Local Times: - WA: 5:00 PM - NT, SA: 6:30 PM - QLD, ACT, NSW, TAS, VIC: 7:00 PM311Views1like13CommentsWebcast: Just diagnosed with metastatic breast cancer, what’s next?
Hello everyone! We have just launched our next webcast, which will be hosted online on the 11th of August. If you'd like to register, please click here. Please find below further information on the digital event. In 2022, it is projected that over 20,000 people will be diagnosed with breast cancer. Of those diagnosed, it is estimated about 5 to 10 per cent will have metastatic disease at presentation, often referred to as de novo metastatic breast cancer. For people who have had a previous breast cancer diagnosis, hearing that your cancer has spread can be devastating, and for others, it might be their first breast cancer diagnosis. It’s common to experience feelings of shock, distress and fear. Having a clear understanding of what it means to have metastatic breast cancer and the treatment options available to you can help you feel more in control when making decisions about your care. It’s important to know that with current advances in treatment, people are living longer and with a better quality of life. In this webcast, we will hear from Medical Oncologist Professor Fran Boyle, Metastatic Breast Care Nurse Alice Gibson, BCNA Consumer Representative Ros Casperson and BCNA member Cybele Orton. Fran practices at the Mater Hospital in Sydney and is a professor at Sydney Medical School. Her research focuses on breast cancer treatment, supportive care and health professional communication. Alice has been a breast care nurse since 2018 and supports her patients and their families as they navigate the complexities that come with their diagnosis. Ros is a young mum who has lived with metastatic breast cancer for over five years and Cybele was diagnosed with early breast cancer in 2010. Genetic testing showed Cybele had the BRCA2 gene mutation, prompting her to have a double mastectomy and hormone-blocking treatment. Then, in 2017 she was diagnosed with metastatic breast cancer. The webcast will address what is important to know in those first few weeks after a diagnosis of metastatic breast cancer including navigating the health system, treatment options, identifying key members of your treating team, and the support and care available to you. Event Details Date: Thursday 11 August 2022 Time: 7.00pm - 8.30pm AEST Where: Online – from your computer, tablet, or laptop Your Local Time: WA: 5.00pm NT, SA: 6.30pm QLD, ACT, NSW TAS, VIC: 7.00pm291Views0likes2CommentsMaking Metastatic Breast Cancer Count - Parliamentary Friends of Women's Health panel discussion
BCNA and the Parliamentary Friends of Women's Health are holding a panel discussion – Making Metastatic Breast Cancer Count – at Parliament House, Canberra, 8-9am Thursday 3 August. It’s part of our advocacy calling for people living with metastatic breast cancer in Australia to be consistently counted on our cancer registries. If you are not counted you are not seen, which means you are ‘invisible’ when health service providers and policymakers plan cancer services and support. The event to be co-hosted by MPs Peta Murphy and Bridget Archer, will also hear from BCNA Consumer Representative Lisa Tobin from Perth who has been living with breast cancer for 23 years and metastatic breast cancer for the past 11 years. This event will be livestreamed from 8-9am AEST on Thursday 3 August via this link: https://aph.webex.com/aph/j.php?MTID=m7904c34e381cececf621eb6987c0e4c4 Please note that the livestream is being hosted by the Australian Parliament House on Webex. Webex is free to use either in-browser or by downloading the client onto your computer. We are aware that this may be your first-time using Webex, we encourage you to join the meeting early to ensure everything is working. You can also find troubleshooting assistance here. When you join, please ensure that your microphone and cameras are turned off.261Views2likes11CommentsBreast Cancer Trials - Q&A 'BREAST CANCER AND HEART HEALTH'
Sharing Breast Cancer Trials upcoming event on Wednesday 7 August from 5-6:30pm (AEST) In our next Q&A event moderated by Author and Journalist, Annabel Crabb, our panel of experts will explore the topic of breast cancer and heart health; the nature, prevalence and management of cardiotoxicity and cardiovascular disease after breast cancer; strategies for prevention; a multidisciplinary team approach to risk management including the role of GP’s and cardiologists; and self-management strategies to reduce cardiovascular risk. We will also hear a patient’s perspective on the long-term impact that breast cancer treatment had on her heart. Head to the Breast Cancer Trials website for more information https://www.breastcancertrials.org.au/qa-events/qa-breast-cancer-and-heart-health/221Views2likes9CommentsAsk the Expert: Managing cognitive changes related to breast cancer treatments with Jo Lewis
Good afternoon everyone :) We are hosting our next Ask the Expert event on the 24th of May at 7.00pm AEST. Many people report mental fogginess, feeling vague, memory loss or concentration problems during and after treatments including chemotherapy and/or hormone-blocking therapy. These side effects are often referred to as chemo brain or chemo fog, but the formal term is cognitive impairment. Research is being undertaken in Australia and around the world into the best ways to manage cognitive impairment, however there are strategies that can help. It’s important to speak to your treating team for advice and support if you are having cognitive problems. At this Ask the Expert event, we will hear from occupational therapist Jo Lewis and BCNA member Kate Keogh Murray. Jo has over 20 years’ clinical experience as an occupational therapist and her clinical work specialises in workplace rehabilitation and work health and safety. She is currently completing her PhD, investigating how cognitive changes experienced by women with breast cancer impact on return to work. Kate was diagnosed with early breast cancer in 2017 and is currently experiencing cognitive changes due to her breast cancer treatment and prescription medication. This session will address what you need to know about cognitive impairment following breast cancer treatment, including key causes and symptoms you may experience, effective strategies and practical tips to help you manage symptoms, and where you can find help. During this Zoom event you will be able to ask Jo and Kate questions. Please share your questions prior to the event via the question box on the registration page, email events@bcna.org.au or during the evening via the discussion box on your screen. Please click here to register. Thank you, Isabella221Views0likes2CommentsTogether for breast cancer - BCNA
With October being breast cancer awareness month, we wanted to share updates with you throughout! So simply scroll down this post to see updates within the comments! Breast Cancer Awareness Month starts today, and it’s the perfect time to get together with your community to support Australians affected by breast cancer. We love to see the Pink Sports Day clubs kicking off the month the right way with their #PLAY4BCNA activities. Here are a few fantastic photos from our Pink Sports Day hosts so far this year! Host your own Pink Sports Day with your club or school team this month by registering here https://www.bcna.org.au/host-a-fundraising-event/ Together we're helping all Australians affected by breast cancer.201Views1like11CommentsBCNA Webcast - Breaking Barriers: Global Insights and Local Voices on Metastatic Breast Cancer
Join us for BCNA’s latest webcast Breaking Barriers: Global Insights and Local Voices on Metastatic Breast Cancer. The webcast will feature special guests Dr Hope Rugo, a renowned expert in breast cancer research, and BCNA Consumer Representative Laura Yannouni, who is living with metastatic breast cancer. Don't miss this unique opportunity to gain valuable insights, learn from leading experts, and be part of a conversation that aims to drive change and foster hope. Date: Tuesday, 13 August 2024 Time: 3.30pm to 4.30pm AEST Register here151Views4likes9Comments