Sad and lonely
Hi everyone. I’m new here, recently diagnosed with high grade DCIS. I had a wide excision to remove the DCIS and margins. Results showed small amounts of invasive cancer in the margins, so a week ago I had another surgery to remove that invasive tissue and a few lymph nodes. I’ve been coping with everything pretty well and have a loving supportive family. I also have a huge network of friends. However, today, I’m sad. Like tears won’t stop. I haven’t had anyone visit me this week - I get it, people have lives and are busy, but I feel forgotten and as if people think it’s all over now… I don’t get results from second surgery until 2 June so the waiting is torture. I don’t understand why I am being so unreasonable about the lack of visitors!! Does anyone else feel this way? I also have a colleague going through BC treatment. She had a double mastectomy and is amazing- turns up to work straight after her surgery and seems to be coping so well. I feel like I can’t be honest about my feelings at work as my diagnosis is not that bad. Again, this makes me feel so selfish!
Radiation oncologist recommendations, Sunshine Coast, Queensland.
I am about to undergo a wide excision for DCIS and I will later be referred to a radiation oncologist. Wondering if anyone is happy to share their experience with particular radiation oncologists on the Sunshine Coast. I will likely be going down the private patient path if I do require radiation treatment, as I wish to have the DCISionRT test (I have just learned that both Genesis and Icon offer this test).
Decision
I have been diagnosed a second time the first was DCIS 3.5yrs ago, had a lumpectomy without radiation or chemo. Cancer has now returned in the milk duct 2mm. I am having surgery soon was given choice of total mastectomy or total nipple and aerola removal. His recommendation was mastectomy, I have chosen the later. Now wondering if I was offered radiation after the first surgery would I be in this situation now. Also not recommended for radiation after this current one. Not sure if I have made the right decision.
Post radiation lump
Hi all, I had DCIS which was extracted last November (wide local excision) and completed my radiation therapy in mid-Jan '24 which I did really well with. Was completely elated when the treatment was finished only to find a month later that I have some soreness in my affected breast with a hard lump now apparent and confirmed by my GP today. She has referred me for an ultrasound etc but wanted to canvas the group if anyone experienced anything like this or knows of similar side effects. Calcification perhaps?Radiation Therapy public vs private
Hi everyone, I have recently been diagnosed with DCIS High Grade and about to undergo a second surgery at a public hospital to extract more tissue via a re-excision. My question is how to go about deciding who to go with for Radiation Therapy which has already been recommended to me by my surgeon. I have heard about this decision tool called DCISionRT that Genesis Care provide which basically determines whether radiotherapy will be of benefit to me. I wanted to see if anyone out there has any experience with this company, the good the bad or the ugly or otherwise any general recommendations of where to go for radiation treatment in Melbourne. I am not so concerned with cost at this stage more general experience.
ER -ve DCIS have had Tamoxifen offered
Hi brains trust. I have just had single mastectomy due to high grade and large DCIS. The results from pathology show that the DCIS was ER/PR-ve and HER2 +ve. I’ve been offered Tamoxifen as an option to reduce risk on other side. Am I right in thinking this would not help if I get the same kind of DCIS or cancer in the other side? I’m not sure how keen I am to take hormone blockers as my understanding is that I now have same risk as the rest of the population. Anybody else been in this situation? Any suggestions on where to research?New DCIS diagnosis in Brisbane
Hi all, I've had two lumpectomies now for DCIS, which was caught in a routine mammogram/ultrasound. I'm waiting for the final pathology results from the last op and will then move on to radiation therapy. I'm wondering what the wait times are like in the public system (probably RBH). My mum is worried I'll be waiting too long but the cost from the private surgeries/pathology/screening/anaesthetics etc. was around $5K before rebates. Does anyone have an idea of how long I'll wait and if that wait will be okay?Double mastectomy for single DCIS?
Hi! New to this so bear with me. I was diagnosed last week with high grade , large DCIS multifocal Pr +40% and Er - left breast 6cm. Being smaller breasted it is likely i will lose the breast and in fact i will be choosing this as i have a sun keratosis lesion on my nipple anyway and also would prefer to avoid any recurrence and radiation if possible. What i am wondering is instead of reconstruction to that breast has anyone taken the healthy breast as well to match and stayed flat? Will surgeons generally agree to this in the public system? I realise its overkill as far as treatment goes but is it any different than a reconstruction? Just think i would prefer to have my breasts the same but at this stage do not want reconstruction or prosthesis.DCIS and endometriosis- HELP!!
Hi everyone, totally new to this amazing network and this whole new world of cancer & DCIS! I am looking for advice to to hear from ANYONE who may have been through something similar to what I am going through. two months ago I found a lump in my right breast and the GP sent me off to the experts. Biopsy’s, ultrasounds, MRIs, mammograms later it’s DCIS. I am run through the options and go into for a wide local. During this surgery they find a 0.8m tumor and remove and take wider margins. However they do not come back clear, so the following week I go back in for some more “housekeeping” and wider margins. I was told yesterday that those margins are clear, hooray! The direction now is that they want to do 5 weeks of radiation and put me on Tamoxifen for 5-10 years. HOWEVER, I have endometriosis and have been told tamoxifen will heighten my endometriosis. Along with the standard early menopause (should say I am 39 years old with one kid, happy with one child, based in Newcastle NSW). As this has already been such a whirlwind, I am trying to find resources or people who have had to go into early menopause - did you get endo side effects? Or if you already had endo, did you opt to have your ovaries etc removed to stop any side effects/pain? Or did you opt for a mastectomy instead? Soooo many questions! I am discussing with all doctors and specialists but haven’t ever spoken to another person in my position. Please PM me or comment if you want to share your experience thanks for listening 😊
