Newly diagnosed
Hi I’m 44 and have just been diagnosed with triple negative metastic breast cancer. It has spread to my liver. First time cancer and extremely scary. After first finding out it was cancer it took nearly 3 weeks to get oncologist appointment and then had a pet scan. They have referred me for a clinical trial at the PA but everything seems to take so long. Meanwhile I’m scared it’s spreading more. Finally got a phone call yesterday to go in tomorrow to have all this pre screening tests done. Let’s hope I meet the criteria. I’ve been just trying to live life normal and trying to be very positive but is so frustrating.
Participate in research aimed at relieving hot flushes and night sweats
Participate in research aimed at relieving hot flushes and night sweats experienced by women after breast cancer. Researchers across several states in Australia are conducting a study to evaluate a potential new treatment aimed at relieving hot flushes and night sweats in women diagnosed with breast cancer who are taking hormone blocking therapy (either tamoxifen or an aromatase inhibitor). While clinical trials have found hormone blocking therapy can significantly reduce the risk of breast cancer coming back (recurring), many women experience menopausal-like symptoms when taking hormone-blocking therapy. While these side effects are mild for many women or lessen over time, some women experience significant symptoms which can be difficult to cope with. The study will determine whether QUE 122 (a small molecule which was found to lessen hot flushes and night sweats in an earlier study) is effective in reducing night sweats and hot flushes in women affected by breast cancer being treated with hormone blocking therapy. You may be eligible to participate if you are: Aged 18 to 70 years Are taking tamoxifen or an aromatase inhibitor (i.e. anastrozole (Arimidex), letrozole (Femara) or exemestane (Aromasin). Are experiencing 7 or more hot flushes/night sweats each day/evening. Are able to attend 6 study visits at the research site over approximately 9 weeks. This study is taking place at sites in Melbourne, Sydney, Adelaide, Brisbane and Perth. If you are interested in participating or would like further information, please contact the study site closest to you
Trial Drug
Hi All, So was with oncologist on Monday and was offered to go on a free trial for a new drug. Just wondered if anyone knew anything about it. It is called Neratinib. Apparently it has been released in the US. Trial approved but not funded in the UK and same in Australia. It’s for women who are oestrogen + and Her2+ and it’s supposed to lesson my chance of recurrence but only by 5%. You take it for a year apparently and side effects can be pretty rough. Would love to hear if you know anything more about it xxx
PIKNIC clinical trial
I was diagnosed with metastatic breast cancer in 2016. I've tried a few different chemos in that time. The latest was Eribulin. All the scans show the cancer is stable but my tumour markers have been rising. I've tolerated the chemo well up until the last 6 weeks where I have been getting almost daily headaches & numerous migraines. So when I saw my oncologist recently he suggested I take a break from the Eribulin for a month which I agreed to. He also asked me if I wanted to be part of a clinical trial. It is called PIKNIC & being run out of Peter Mac in Melbourne. It is a drug you take orally every day. I saw the clinical trial doctor last Friday to get more information. She said the major side effects of this new drug was diabetes. This really concerns me. Is anyone on this site on this trial or know someone on it? What has been your experience? What are the side effects for you? Thanks
Low level laser therapy and radiotherapy
I had laser therapy the other day to help sort out cording issues. While I was there, the physio mentioned that it was being used overseas in trials to promote healing during radiotherapy for breast cancer. She also mentioned that although there seems to be a reluctance here by the radiation oncologists to use it, she was aware of a couple of people who had done it. Has anyone on the network tried this or investigated it?
