Update: I got heavy period 1 week after 1st Zoladex injection. Any similar experience?
Hello everyone. I wish you have a happy Sunday. I am 33 y.o. and diagnosed with localised advanced HER2-positive breast cancer last month. I got zoladex injection on Thursday (12/9). As expected, I didn't get the period which is normally usually come around last weekends. Got my first chemo on Friday (20/9) [I choose to go with Perjeta/Pertuzumab treatment btw]. Overall so good, only normal sympthoms like sore and dry throat, thrush, very mild tingling sensation. may be because I still consume the dexamethasone as prescribed for Day 2. I took the Ziextenzo (pegfilgrastim) injection around 25 hrs after the chemo as instructed. No alergic reaction. Only mild ache. But, a couple of hours later I felt burning sensation during urination and when I tried to hold my urine, then the urine got redder plus I found blood on my panty. I went to ER. Surprisingly my temp a little bit over 38C (At that time I felt okay, no sweat or chills). Got observed, blood test, urine test, chest xray. Overall nothing concerning except the blood in urine and the discomfort during urination. During the urine MCS I found blood on my pads like during period, but redder (usually I have darker spot). This made me unsure whether the blood came from my urethra or uterus. But because I feel pain during urination + the fever, I discharged with UTI diagnosis. Got antibiotic iv + antibiotic prescription. I got much better after had some sleep at home. It is still a little bit hurt during urination, but much-much better. However, the blood got redder and it become more-more similar to period sympthoms. Like a heavy period will storm in. I plan to observe what will happen today, and will consult my oncologist tomorrow. But, if someone here have experience with period after 1st zoladex injection or similar sympthoms, I will really appreciate your insight (PS: Sorry for the long post and grammar mistake, english is not my 1st language) Thank you :heart:23Views0likes0CommentsCardio-Oncology and Chest Irradiation
I highly recommend this recording- Cardio-Oncology for Hodgkin Lymphoma Survivors https://youtu.be/lyf6ZtDgkVM?si=84qAfUtTpM5I6-Vz Although the presentation focuses on cardiovascular disease risk in survivors of Hodgkin Lymphoma, the information is relevant to anyone who has received radiation to the chest.11Views0likes0CommentsCold cap - is it worth continuing the frosty hell?
Hi ladies...having had two surgeries (masectomy and DIEP flap) in June / July I am now on the chemo journey 4 x AC (every 2 weeks) and then weekly Taxol for 12 weeks. It sucks. I have had 2 rounds of AC and tried the cold cap for both. The first time it was manageable although not fun but the last round (this Thursday just gone) was unbearable and I felt so unwell the entire 4 hours of chemo even with all the drugs. I am now wondering if I can do this for another 14 more rounds. This week will be the week my hair should start to fall out which fills me with dread but so does 14 more rounds of cold cap. I feel absolutely awful for days after chemo and have horrible nausea and the whole process is very overwhelming. Has anyone had AC and Taxol and done the cold cap for so many treatments with success? I would appreciate any advice as I now feel even more anxious about my next round. Thank you so much x71Views0likes4CommentsIce cap or no ice cap? personal experiences?
Hi All, I was newly diagnosed mid December, have had surgery and am recovering well. I am due to start 12 weeks of weekly chemotherapy using paclitaxel. I will also be receiving Herceptin 3 weekly for 12 months and goserelin (hormone treatment) for 5 years. I have been told about ice caps to minimise or prevent hair loss. From reading it seems that this doesn't always work and also sounds painful. I was wondering if any of you had personal experience of using or trying the cap - obviously the good and the bad. I think it's not so much losing my hair that is bothering me, but the thought that then it is so public and there is no hiding it then :( Thank you so much.183Views0likes18CommentsCold cap with chemo to save hair!
I have the chance to wear a cold cap when I start chemo next month. The nurse wets your hair, rubs conditioner in it and you put the cap on that has -20 degrees water running through it! Has any one tried it? They say you get quite cold and need a blanket . Be nice not to have to loose my hair, but sounds like torture!483Views0likes28CommentsPaclitaxel & Hot spotty hands, spots on arms and rashy ankles and spots on legs, rash on both knees
Hi Sisters, I looking for advice or tips that may have worked for you. I'm on weekly Paclitaxel and have hot spotty hands since week 2 (have completed 7 of the 12 Paclitaxel), which looks like sunburn. I bought cotton gloves to wear for protection at Priceline. My big toe nails have lifted but not fallen off completely and are manky looking and funky smelling (have tried condy's crystals for toes on my GPs recommendation and what a disaster with stained feet and nails, I've swapped to soaking/washing in a dilution of Dettol and Espsom salts). My feet, ankles and legs have now developed spots and a rashy look. Oncologist didn't say much but recommended cortisone cream for spots and anti fungal treatment for toes (I haven't tried that yet, but intend too). I started chemo in July and I've completed 11 out of 16 rounds - every three weeks I also have Carboplatin with Paclitaxel, which seems to give me more side affects. I have lost 99% of eyebrows and lashes and of course I'm bald. thank you, Bron134Views0likes6CommentsFluke???
Three weeks after finishing Paclitaxel I got severe leg cramps that refused to go away. Six weeks later I have an Oncologist appointment. She informs me it is delayed Neuropathy caused by the taxol but it is no way associated with my three weekly herceptin and then has a couple tests done to rule out anything else. Three weeks later again and they are being kept under control with lovely drugs. Here is the thing. Day 4/5 of my Herceptin cycle the cramps get worse, every time. Even with the drugs I wake up with the pain. Is the herceptin flaring up the damage caused by the taxol or did the herceptin cause the damage or is it all a fluke and the Australian doctors are correct in that Herceptin couldn’t possibly be related to any of this?121Views0likes7CommentsWhat to take to chemo and tips
Hey all you lovely people. I start chemo next friday. I am having ac and t. Then taxol and herceptin. I am looking for tips from everyone. What should I buy to make my life easier eg eye drops etc. And what do I take to chemo. Do i need to take a blanket? Just looking for some advice pl3ase and thank you. I read a thread and it freaked me out the amount of stuff i need just to make life normal. Like after chemo you should get a squirt bottle to spray yourself after you pee. Apparently ac and t burns. Your nose drips constantly. Your head is sensitive after your hair falls out etc. Thoughts please and thank you.141Views0likes17Comments