Gah. Back again.
Almost seven years ago I roller-skated through Olivia Newton John hospital to Xanadu for my last radiotherapy session, post lumpectomy. Here I am again... another oestrogen positive cancer, same stoopid dense breast. It was picked up on MRI as it couldn't be seen through my milky dense breast tissue and after an MRI biopsy (such fun!!!) I was diagnosed last week. So now I'm up for a double mastectomy and trying to make reconstruction decisions. I'm thinking I may need to go the Johnny Diep Flap. Seeing the plastic surgeon tomorrow. Really glad you're here....
Both !! Triple negative and HER2 positive diagnosis in the same breast synchronous
Hi i have just had a left breast full mastectomy and sentinel node/s excision due to initial diagnosis of extensive high grade DCIS. I had DIEP flap reconstruction at the same time. Tests of the removed tissue indicate both Triple negative and HER2 positive cancers (early stage) in the same breast at the same time. My surgeons are on leave. I have only received a partial summary report so far and don’t get full results or next steps for treatment til end of January. Is this unusual to have 2 types of BC at once? In the same breast? Any others have similar experience. The half news and lack of next steps just now with all the specialists away is a psychological and emotional challenge. Advice appreciated thank you 🙏🏼
Double Masectomy or radiation
Hi, I'm new to this forum, I'm 42 and was diagnosed with early breast cancer 7 weeks ago. Hormone +ve herceptin -ve I had a lumpectomy and sentinel node biopsy and am healing well. The nodes came back clear (yay what a relief) but the lumpectomy showed 2 additional smaller tumors that the original MRI didn't pick up. (I have dense breasts so Mammogram/ ultrasound didn't pick up anything). I've been having yearly MRI for 15 years. I have a family history of breast cancer, my mum and 2 aunties and possibly my grandmother. All diagnosed below 50. I don't have a breast cancer gene. I have to decide (quickly) either to go ahead with radiation or have a double masectomy to reduce my future risk. I had basically decided on masectomy but then the gene test came back clear and threw my decision making process into disarray. Has anyone on here, at high risk decided to have a double masectomy (with implant reconstruction) even when they didn't need it to treat their cancer? I'm wondering how you made your final decision? A few things holding me back from making the big decision, is the -numbness across my chest after the masectomy (did ladies find this hard to get used too)? - with the under muscle implants, did ladies find they caused any muscle weakness long term? I'm finding it a really hard decision. My mum fought hard to keep her breasts (and so far is still clear 18 years later) and I'm leaning towards the full masectomy, as I'm a single mum with a 4yo and the weight of another cancer weighs on me. Sorry for the long ramble 😁
Reclaim Your Curves - Choosing Breast Reconstruction - Sydney Support Lunch Sunday 24 June 2018
Dragonfly Cafe, Eden Gardens, Macquarie Park 12noon to 3pm Come along and join us over lunch – a relaxed and informal setting in which you can ask any questions you may have, share any gems of information you may have gathered, and meet up with other women who understand and share a similar experience to yours. Look forward to meeting you. Annmaree and Rosemary
SELF CHECKING AFTER A DOUBLE MASTECTOMY AND LOBULAR CANCER
Hi all, I have just had my reconstruction which hasn't been successful..(that's another long story) but I am wanting to know if any one had Lobular Cancer , double mastectomy and breast implants? I was booked in for an MRI and my surgeon canceled this due to me having my tissue removed in both breasts, she then told me I have to self check my boobs as there is no screening etc. Again I left the hospital appointment with no clue how to do this self checking, and my anxiety has hit the roof thinking... I had no lumps in my breast that I felt and the mammogram picked up calcifctions not my cancer, and I was then told I have the 'Sneaky Cancer' So how do I know if the cancer returns? if technology did not pick this up, how do I do this to 'prevent' this going to my lymph.(The breast Care nurse stated that I will feel a lump in my lymph) But I don't want to get to the stage of it returning in my lymph.. Also I have the Zoledex injections every 28 days as I was high risk as near my chest wall.... how do I check the chest wall etc? My breast care nurse said to speak to my oncologist at my next appointment, to show me how to test myself, but im wondering if anyone else had a double mastectomy with lobular and how is the after care with testing? Thanks and hope you are all keeping well xx
Negative impact of radiation on Flap (autologous) reconstruction??
Hi all, will have mastectomy in a couple of months time, am considering to have an immediate breast reconstruction (IBC) using my own tissues/ flap (autologous). Unfortunately, I will have a series of radiation after the IBC. I am worried the radiotherapy will kill/destroy/ causing complications on the flaps. I did some research at my end. However the comments were conflicting. Therefore would appreciate your advice. Please..no advice is too silly. Thanks heaps!
Whats happening in choosing breast recontruction
Hi all, If you haven't been over to our group lately here's a snapshot of our latest posts. We have a new member having her recon on Monday Questions about recovery pain after implants Another member struggling after losing an implant A post from a member counting down to her DIEP reconstruction Mel is almost at the finish line getting her Nipples tattooed next week and another member with questions about post op nipple care As always we have very generous members adding to our growing PHOTO STORIES announcement. This is such a great place to start if you are wondering realistically about outcomes. We are so very lucky so many of our members very generously share their personal stories If your aren't a member and would like to join just click here. Don't forget our group is private so you need to visit to read posts. Please if you think you can offer some words of wisdom, please do, or just pop over and say hi. Have a great weekend all Paula and the team Jane @jane221 Chris @chorsell Alex @alexinbrisbane, and Louie @LouiseTurner
Popping into groups
Hi everyone just a reminder that all groups get new members and it is great if you can pop into the group and check on new posts and reply if you can help with the private groups you are members of... Lets talk about Vaginas Christians Diagnosed with BC Choosing Breast Reconstruction Etc
