Quote_Queen_67
Member
User Profile
User Widgets
Contributions
Lymphodema Professionals
Have seen a Lymphodema Massage Therapist four times since my full auxilliary clearance in March who I am very happy with, however I have moisturised, massaged and kept active using my right arm but have noticed recently that my right arm is getting thicker. Is there a difference as to the treatment you would get from a Physiotherapist for lymphodema? Wondering if I should seek a physiotherapist's advice too?113Views1like3CommentsRe: Phone Contact with Eastern Health Breast and Cancer Centre
Thank you Nefertari. Yes, this is the brand new clinic attached to Maroondah Hospital - a very much needed facility here in Victoria. I have only my own experience to go by so far and I would like to hear of others experiences.11Views0likes0CommentsPhone Contact with Eastern Health Breast and Cancer Centre
Just wondering if anyone else has had difficulty contacting the Eastern Health Breast and Cancer Centre by phone? Maybe it's just me but every time I call I get transferred to an answer machine, either for appointments OR to speak to a Breast Care Nurse and am told someone will call back. And they usually do, however, I cannot always get to their call, maybe I miss it due to driving or some other reason, so it flicks to a voicemail that asks me to ring the same number again - the number that transfers me to the answer machine! Forgive me for sounding frustrated but I am usually needing to speak to a person when I call - I don't want to leave a message to be called back. It's usually taken me all my energy to sit down with my diary or my question, I may even be distressed and needing some reassurance about something from the Breast Care Nurse and so an answer machine just does not cut it! I am not complaining about the staff on the desk, or any of the staff that operate out of this clinic - to be honest, I have never met more caring and helpful hospital staff - it's about the system. I really want to give my feedback but I want it to go to the correct person and I am thinking this would be an administrator? Who organises how the phones are answered? It can't be a case of understaffing - there are usually three or four receptionists on the desk! I also found out that even the Day Oncology nurses cannot phone an internal number to this clinic and have to resort to walking round there to speak to someone. This I find unacceptable. It is a beautiful clinic and the staff are lovely but the system of dealing with patients on the phone falls down dreadfully. Before I give my feedback, I would like to know if there are any other breast cancer patients who have faced a similar experience.85Views0likes2CommentsRe: Survivor mode
@Sazbe - you are in my thoughts. Telling loved ones, especially close family is the hardest for sure. I had to tell my mum via messenger first and let her take it in. Then we called each other. We continue to message daily now and this is a help to me. You doing just fine, taking your time about disclosing this news but know that most people are very supportive once they know and you do need their support. Love and hugs to you.0Views0likes0CommentsRe: Survivor mode
Thank you! Lots of positive advice there for me. I am a naturally positive person so my tank is usually more than half full but I am feeling it being used up right now. The blog idea is a good one - might think about that. I work part time so am not the major wage earner but we need my salary to supplement my husband's wage. I know I have a few weeks sick leave stashed but I will end up taking unpaid leave I guess. I think we will manage but it will be tight. There are some awesome people on this site - so grateful for this! Thanks again Sister!3Views3likes0Comments
Groups
No places to display