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Mabel

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Joined 8 years ago

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Re: Triple Negative Metastatic Lung
Thank you all of you for taking the time to write to me. It is a dreadful thing to go through but you do get to see the best of people when you are living with this hideous disease. Thank you Wendy55 for the support recommendations. I have wonderful family & friends but it is good know other support is out there. Thank you all again.
8 years ago Place Living with metastatic breast cancer
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Triple Negative Metastatic Lung
I was diagnosed with triple negative breast cancer stage three in Match 2017. I underwent chemo, a lumpectomy and radiation followed by a course of captectabine. I had a reoccurrence in April this year and I was diagnosed stage four with spread to lymph nodes in the mediastinum and right pleural. The cancer has also invaded the skin of my right breast which has resulted in a painful skin condition. I have had 7 chemo’s and self funded Keytruda (immunotherapy). The Ketruyda made me very unwell and seemed to stimulate disease progression. I now have lymphangitis carcinomatosis in my left lung and a pleural effusion in the right. Have had effusion drained twice but it comes straight back. I also now have a liver met. I am on a high steroid dose which keeps me mobile short distances but some days I require oxygen which I have at home. I have just finished my first round of a combo of avastin and a chemo drug navelbine. I am 42 years old and I have two young children. Although recently place under palliative care I will never give up and my Oncoligist is on board with this. I am looking to connect with anyone who can provide me with a positive story in a similar situation as some days I find it hard to find hope which is what has kept me going through all of my treatments. Thank you.
8 years ago Place Living with metastatic breast cancer
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Living with metastatic breast cancer
This is group for people living with metastatic breast cancer (also called stage 4, secondary or advanced breast cancer). This is a safe, understanding space to connect with others who truly get what it’s like to hear the words that you are living with metastatic breast cancer. Together, we offer each other strength, compassion, hope encouragement and a place to talk openly—whatever you're facing.

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Mabel

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Re: Triple Negative Metastatic Lung

Triple Negative Metastatic Lung

Living with metastatic breast cancer