Joleystub
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Re: Cording/axillary web syndrome
Thank you Kristen. Very good information! My Physio is on holiday at the moment and even though I got relief from my massage on Thursday, it WAS painful. I will look at the resources you have listed and hold out until I see her again in a couple of weeks.😃120Views2likes0CommentsCording/axillary web syndrome
Hi everyone, it's been a long time since my last post and so much seems to have happened in my life in that time. After having a lumpectomy and axillary lymph node removal on the right side, July 2024, I undertook chemo and radiation. Since then it's been medication treatment with Letrozole (hormone lowering) and Verzenio (cancer blocking). I've undertaken some gym working, focussing on weights to build bone strength but still have residual side effects from all the treatments. I've been to my lymphatic physio yesterday and she informs me that I have axillary web syndrome which is travelling from my affected breast down the fascia of my ribs. Quite painful! And after her massage (sounds nice, but wasn't! 😩) I was wondering how many of you might have had the same? Do you have any tips that could help me please? It's lovely to reconnect again and hope to hear your story. ☺️ Jo400Views0likes16CommentsRe: 50/50 on chemo - what to do
It's a decision that is a hard one but sounds like without it having been in your lymph nodes may be treated well with radiation and hormone therapy. If you can get by without the chemo, my personal decision would be do it but I would be asking more questions of the oncologist. This is a great place for you to gain support ❤️27Views1like0CommentsIts been a while
Its been a while since I posted. Since my first post, I've completed my 2 months of AC, then had a little health blip with fevers and an infection that the medical staff couldn't find in my body, then I had a frightening Supraventricular Tachicardia event, thankfully whilst I was in hospital where basically my heart decided that the heart rate should not go below 200! Turns out my lungs hadn't responded very well to the AC treatments after all! On the Oncologists advice, the weekly Paclitaxel treatments was suspended for a couple of weeks but now I am back on treatments, my mouth has flared up with ulcers and is majorly sore. Sucking on lozenges and rinsing with an Anaesthetic mouth wash is tedious, but we do what we have to do right? The most annoying thing I am finding is that my vision seems to have changed in the 4 months since I started this journey. I struggle to be able to read things for a long period of time. I'm hoping that once I am through the chemo that my vision may(?) return to normal? Anyway, onward and upward :#107Views1like4CommentsRe: Hello there Just Diagnosed
The waiting is the worse. I was diagnosed by mammogram too as ER+ and PR+ HER-. After a lumpectomy and node removal I have started 5 months of chemo this week. With the waiting, be proactive with your time. Walk, exercise, prepare meals and draw on all of the resources that are amazingly available. The very best of luck to you and all of us going through this experience. 🩷46Views1like0Comments
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