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Mich_x's avatar
Mich_x
Member
13 years ago

Update

Hi girls

Just a quick update of where I am at with the breast lymphodeama...........It has been an ongoing saga since Xmas with the recent all clear that it wasn't Inflammatory BC......

I have been staying in Perth lately supporting my sister whose husband had a terrible stroke and he is in Swan Districts hospital stroke ward which is just around the corner from the lil unit hubby and I brought at the beginning of the year.

Anyway I did a flying visit back home 400klms north to check house and garden etc. and while I was there I got to see the physiotherapist that has been working with me previously on my problem but not seen her since April.  She said my breast had got worse.  I then also had an appt with my GP who took one look at the breast and got on the phone straight away to the breast centre where I had my surgery and got me an urgent appt with surgeon of who I saw Tuesday just gone and they also agree mmmmmmmm not quite right.  They in turn got me in for ultrasound for yesterday.  I am thinking here we go again another ultrasound but they decided to throw 1 fine needle aspiration followedby 3 separate core biopsies in to the major scar tissue from the surgery.  Needless to say 1 1/2 hours later after laying on my side and my bad arm stretched above my head and just a few lil puncture holes I was sent home to wait for results next week. I go back to see the Surgeon the day before I fly to Sydney for the Summit.  They have also been talking about skin punches which are like core biopsies only bigger and also an MRI ......

I know it can't be the big C as I have had a pet scan to say I am all clear?  mmmm can it??  I am sure it isn't and they are just checking out the extent of the scar tissue which is huge and seems to be growing which is making it hard for the fluid to disperse and that is why my breast lymphodeama continues to worsen instead of get better.  That is my reasoning anyway but I am no doctor and will wait till next week so my assumptions don't become wrong and another shock comes my way.

I am soooooo looking forward to Sydney.  Roll on next week.

I will keep you posted girls.

MAY THE WIND BE ALWAYS AT YOUR BACK AND MAY THE SUNSHINE BE WARM UPON YOUR FACE.

Wishing you all wellness and happiness always.  Mich xoxoxoox

 

18 Replies

  • I'm with you girlfriend on all the above you have said.

    Roll on Summit and a good time with friends.

    Looking forward to seeing you soon and giving you a hug and a big hello.

    Lots of love always, Mich xoxoxoxo

  • Poor darling,what can I say.They don't seem to want to leave your poor  boob alone do they.Well the biopsy should sort it out once and for all.But how sore and bruised you must be from all those needle punctures and how "over it"you must feel from all those tests you've had this year.I'll keep my fingers crossed that  it's all clear and then we can celebrate with a glass of bubbly at the summit dinner.See you then.      love Tonya xx

  • Hi Mich, sorry to hear that you are again waiting for results. It seems like it never goes away, and is always there in the back of your mind. I know this has been a worry for you over the past months, so at least with some biopsies done the worry side of things should go. A least you will know, and with several biopsies completed you can rest assured when you get the results, which I hope and pray will be normal! Good luck with it all. Love Chris xx
  • Hi Mich, sorry to hear that you are again waiting for results. It seems like it never goes away, and is always there in the back of your mind. I know this has been a worry for you over the past months, so at least with some biopsies done the worry side of things should go. A least you will know, and with several biopsies completed you can rest assured when you get the results, which I hope and pray will be normal! Good luck with it all. Love Chris xx
  • Thank you precious.  I really appreciate your kind words.

    How are you going?

    Mich xoxooxox

  • Thank you precious.  I really appreciate your kind words.

    How are you going?

    Mich xoxooxox

  • It just never stops, does it?  The niggling worries when things aren't completely normal. I am so glad they are checking you out so thoroughly even if it turns out to be scar tissue or an infection that was hiding.  Will be thinking of you, and sending lots of love and positive (positively negative!) thoughts.  Keep in touch and let us know how you are doing.

    Michelle xxxx

  • It just never stops, does it?  The niggling worries when things aren't completely normal. I am so glad they are checking you out so thoroughly even if it turns out to be scar tissue or an infection that was hiding.  Will be thinking of you, and sending lots of love and positive (positively negative!) thoughts.  Keep in touch and let us know how you are doing.

    Michelle xxxx