Time??

It takes a while to get on top of every detail and I don't think I'm there yet and it's been over 6 months.  You should get a copy of every report, even if you don't want to look at it at the moment.  @primek has a couple of good sites up her sleeve to help you decipher the information.  My GP sat down with me and went through my path report to make sure that we both knew what I was dealing with.  I bought a zip-up lever arch file from Officeworks (the first one was a 2 ring binder but it was soon too small) and some plastic sleeves and dividers.  All of my letters, reports, etc., go straight into that folder and I take it to most appointments so I have everything on hand and I'm never searching for that particular piece of paper.  I also ask for results to go to each doctor including my GP - GPs often get left off the list and when you have to see them for something related, they have no idea what your current treatment plan is (the reasoning behind it is that apparently, GPs can get freaked out by some of the blood levels in chemo patients but if they've any sense, they will realise).

@"k@th3r1n3"   

Yep - you should get a copy of every scan, report - everything!  Your GP should also be on every referral so that they get them as well.

I have a big box that I put EVERYTHING in that I get relating to my BC ..... that way it is all in the one spot.   Reports, scans, bills - pretty well everything.  Then I know exactly where everything is too.   

Have you got someone to go with you to appointments, etc as a '2nd set of ears'?  A family member or a trusted friend?  They often pick up on things that you may miss - and are physical support for you as well (and possibly a driver!) :) 

All the best for Tues xx

Thanks will do. I have an appointment Tuesday so will ask then.

It's good to know the details of your cancer for many reasons, one being it helps to find the appropriate information here. But it's also OK to not know all the details if you don't want to. It's totally OK for you to ask your doctors for copies of pathology reports or anythng else to do with your diagnosis. Many people here would advise it. The best thing for you is to do what feels right. K xox

Thanking every one for their time out to answer just one of my phobic questions  <3

I am, however, blown away by just how much you know about what type of cancer you had.

Maybe I should ask for a copy of my report. I guess I am still in a state of shock and not sure what I can or can't demand.

I am really glad that when I feel lost I can turn to this forum that I found by accident trying to ask Dr Google questions.

I am so sorry that we have to go through this but it is wonderful to be a part of such a caring community and if I can do anything for anyone please let me know.

Hi there @"k@th3r1n3". Sorry you’ve had to join the crew on here but welcome aboard. We are all here for you to answer all your questions. I had triple negative stage 2a grade 3 (3cm tumor) no lymph nodes involved May 2016 aged 43. My story different to yours as I had left boob off so i only had to have chemo and no radiation then took the right boob off 6 months later as a preventative did both as my guts told me too.and because of the triple neg diagnosis.  I had my surgery 26th May and then started chemo about a month later. I also had a portacath inserted prior to treatment so I had to wait for that to heal also before I started. Are you having one of thoss put in too love ?  Have you spoken to your breast care nurse too?   Big hug. Margie xx

That doesn't sound out of the ball-park @"k@th3r1n3" I had my second surgery on 8 January, and was scheduled to start chemo on 5 Feb but due to circumstances at the time, actually had my first on 8 Feb.  Mine was after a mastectomy and axillary clearance, grade 2 ILS OR & PP+, HER-.  Even though it was much larger than expected and had gone to the nodes, my surgeon is fairly confident that the cancer has been removed.  Chemo and rads are for insurance.  I healed very quickly so that was one of the determiners for being able to go ahead with chemo at that time.

But question your doctor about the decision re: dates.

Amen

hahaha  I didn't have chemo & my brain is totally stuffed as well - and I have no excuse!!  We just have SO MUCH going on with 'getting on with life' as well as dealing with the current situation/crisis ..... sometimes it gets a bit addled!  ;)  We are not alone in this!  Thank God! xx

I've got chemo brain without the chemo. Didn't think about talking to my nurse. I'll call her tomorrow. Thanks again  xx
And you have a good weekend as well.