Forum Discussion
EAA
7 years agoMember
Post Mastectomy Pain Syndrome
Dear Sisters.. Has anyone had Post Mastectomy Pain Syndrome?
12 years after my first Mastectomy and full auxiliary clearance, I’ve experienced
itching; then prickling pain and feeling of inflammation along the scar and
near the edge of the scapular under the arm. Most annoying in its suddenness
like an attack. Also felt like waves of pain. Relieved mainly with cold pack. ..
until the next attack! Anyone else had this experience?
12 years after my first Mastectomy and full auxiliary clearance, I’ve experienced
itching; then prickling pain and feeling of inflammation along the scar and
near the edge of the scapular under the arm. Most annoying in its suddenness
like an attack. Also felt like waves of pain. Relieved mainly with cold pack. ..
until the next attack! Anyone else had this experience?
21 Replies
- TonyaMMemberI had my mastectomy 9 yrs ago and although I don’t have pain,I have discomfort.I have the sensation of duck tape strapped across my chest and a rolled up paper under my arm.The chest discomfort disappears when I put my prosthesis on.At night I have to sleep with a pillow against my chest.It’s weird- some sort of sensory perception?
- EAAMemberThanks so much for the info Irb 03 Great your therapy falls on the
right day.
- lrb_03Member@EAA Check the Australasian Lymphology Association website, find a therapist link. Many level 1 practitioners are remedial massage therapists. My lymphoedema physio now has a massage therapist working 1 day a week with her. Luckily it falls on the weekday that I have off
- EAAMemberThanks so much. very Helpful..
- iserbrownMemberLook for a Physio practice that has a Remedial therapist and ask as sometimes it is not directly known that is the speciality. I only found out about Jo, my therapist, through the Physio
Hope that helps - EAAMemberThanks iserbrown
very helpful and challenging.. Lymphatic drainage therapists few and far between in Adelaide..but will check again.. - EAAMemberHi Zoffiel,
oh dear! All we want is a life rather than living with added issues from
treatment! I had burning sensation as well.. Because the attack was
sudden, I thought it was inflammatory. The cold pack helped the best.Using cold is a bit of a risk as it can increase the sensations
when the cold wears off . Also, wrap the pack in a little towel.as cold
can also burn. My hunch was it was nerve pain. It sometimes responds to cold. I could move my shoulder OK.
Have you thought of having your implants checked.. another road probably an irritation to consider but, I’ve wondered about the many
of our sisters with implants and the implants recalled! I dont know
if they can setup an inflammatory reponse The fire ants sensation
coukd be nerve pain if cold relieves it, it probably is, if not ...then got
to think it out again.. Actually I started with a cold tap water flannel
under my arm before progressing to the cold pack.
Im seeing the GP to day and hopefully will get an ultrasound at least..
thanks so much for sharing . I hope a way can be found through this
for you and me and others... - iserbrownMemberThe link below I had put up in a previous post when I first come to the realisation of where I was at
Yes it does have a driving me nutty effect and although it has settled to what it was, no longer constant just occasional, it is real. I have remedial massage, lymphatic drainage massage as I find it helps, especially with the annoying sternum pain which @zoffiel mentioned in what she has experienced
https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/pain/post-mastectomy-pain-syndrome.html - ZoffielMemberI've had pain since 2006, but it's mainly related to my implants. Horrible things. My sternum burns and my chest feels like...it's hard to describe. A bit like when you open your mouth too wide? Between that and the fire ants in my armpit, it's no wonder I'm grumpy.
- EAAMemberThanks kmak