I'm so confused now!

Hi IJaney235,

When I was diagnosed by ultrasound not mammogram (I have such dense fibourous tissue that Mammogram is not for me).  I had a 10mm lump that no one could feel,  not even the surgeon.  This lump was not there 6 months prior, I was just having fatty tissue looked at. 

My initial reaction was I want them off.

Biopsy was unconclusive, surgeon telling me it may not be cancer!.  Lumpectomy on 30/04/2013.  IDC with tumor twice as big as expected, Stage 2, Grade 2 ER+ PR+ and  HER2 neg, clear margin and clear nodes.  My surgeon has done a wonderful job, no deformity at all.  No Chemo, have just finished 6 weeks rads.

As ER+  Oncologist has recommened I have ovaries removed, my gp suggested I have hysterectomy as at 49 have no longer any use.  Yep Oncologist agreed as has my gyno so I am having total hysterectomy with ooperectomy in October.  What a relief to get rid of anything that cancer may grow in.

Unfortunately I have a lot of family member with cancer - here we go=

My mum, bowel cancer, my sister bowel cancer at 45, Uncle bowel cancer, his two daugherts, my first cousins 1 lung cancer and the other breast cancer at 45.  So that makes all four grandaughters having cancer. :(

When I first met with my surgeon I said "I want both them off", he said we dont do that, based on all information given I trusted him (I still cannot say that he hasn't done what is right, but was it right for me).  On my last radiation, the breast care nurse and I had a chat, I mentioned my next op and said it will be a relief to have everything out, I just wish that I had been able to have double masectomy, to which she replied "it's your body your choce", so I am now a total nut case, I have always wanted them off but was never given the choice.  I am seeing my oncologist in another week so am going in armed with all information to get the  reassurance I need. No one put me in touch with the local Breast care nurse until  I was about to start radiation , so I didn't get all the information that I should have gotton.  The BCNA books are fantastic, get your copy and read. 

I am angry that I was never given any other option.

Talk to as many as possible, but go with your gut feeling.

I hate the emotional rollercoaster that BC puts us on. 

Wishing you all the best

VivW