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Carolynvj's avatar
Carolynvj
Member
13 years ago

First week & scared

Have today just received my biopsy results - I guess it is more or less what I expected & surprisingly I feel somewhat relieved to the way I have been feeling (totally devastated,scared,angry & out of control) Now that I have the results of biopsy I do I guess feel slightly in control.. Have high grade ductal carcinoma & lymph node involvement also positive hormone receptors??? All a bit foreign atm but am sure I will become so used to this language in my future. Had a great talk with nurse at my local surgery who was extremely helpful & at the end of the day on the "scale" of this I am not at the so called "good" end or the so called "bad" end am floating in the middle. My first appointment is at Peter Mac on Monday so will see where my journey is headed from there.... Oh yes & my husband is fairing ok so as to my 21yr old daughter Hannah, my 19yr old son Sam & my 15yr old son Jake. It is just so hard knowing that I am unfortunately going to have to take them on this journey with me & it is going to be rough but I am trying to be positive & know that I am going to die but not from this.......

16 Replies

  • I was in your position just a few short months ago.  As I type this I am feeling good today after my first round of chemo last week (although the last week has not been at all fun).  My biggest piece of advice to you at the moment is to take every day as it comes.  The beginning all happens so quickly and it is hard to take it all in.  Then the waiting starts, waiting to heal, waiting for appointments etc....  Then it all happens quickly again.  Thinking too much about the next step (in those waiting moments) is not at all good for a positive mindset.  Use those days to do things you enjoy so that there are some positive memories associated with those days.  I caught up with friends, had some lovely dinners, spent time with my kids.....

    I am now going to enjoy the next two weeks before chemo hits again!

    Take care of yourself first!

    Kathy

  • Thanks for your nice comments,much appreciated.   Tonya xx

  • Thank you Majella, I appreciate the fact that people have commented on my post, it just makes me feel less alone & comforted. Still really scared about what is to come but am confident my family & I will get to the other side... Xx
  • Thank you so very much for replying to me it is amazing what support is around. I personally have ordered the 'my journey kit' I am so glad to be in touch with someone who has travelled this journey & will most definitely keep in touch. Thank you again, Carolyn xx
  • you are always so welcoming to members and give great information. I really love how you said " You are doing well if you are floating on middle ground but expect to slide to the extremes throughout this crap journey." it is just that.

    Majella

     

  • you are always so welcoming to members and give great information. I really love how you said " You are doing well if you are floating on middle ground but expect to slide to the extremes throughout this crap journey." it is just that.

    Majella

     

  • It is overwhelming in those first few weeks, you walk around numb. There is so much info and lingo and your mind works overtime. The online forum is here anytime day or night to share experiences and to voice what we might be feeling or thinking. Just remember you are not alone .

    Majella