Hi everyone. Am newly diagnosed (2 weeks) and have a few questions. A routine mammogram has got me here with the details that a biopsy has found cancer cells. A visit to the specialist didnt tell me anymore information other than I need to have the breast off. Pathology will then tell me what I have and treatment needed. Is this normal? I thought I would know what type of cancer I had, aggressive or not, stage etc before surgery and not after??? Also, specialist only recommends having the one off. When questioning him he says their is a slightly increased risk of it coming back in the 2nd breast. I would love to hear from others who have had to make the decision of one or two off and how they came to that decision. At this point in time i am thinking of having both off so that I wont worry about it coming back but would love to hear what others have to say. Thanks in advance.

Hello,and welcome to this great online network!! I was very similar to you.i am almost 3momths past chemo now,but when I was first diagnosed!I found the lump,had a mammogram and ultrasound,then a core biopsy,then the surgeon told me it was cancer and I needed a mastectomy.After the surgery,I was referred to my oncologist,and she had all the pathology results that they do after the mastectomy.(they send it away for detailed testing) The oncologist then discusses your treatment with you.As for having both breasts removed,it is a very personal choice.I had a right mastectomy,and if I had known then,how I feel now,I would have definitely had both breasts removed.I am very small breasted,and it wouldn't have made much difference to me.I never wanted a reconstruction,so it would have just been easier.There is a lot to take into consideration,and if you are thinking about reconstruction,there is a group on here that I think would be the best place for you to get advice from.I am sure that other ladies will come on here with their opinions also,but at the end of the day,it is you that has to make such a personal choice.All the best,and stay on this fabulous network and let us know how you are travelling.Take care.xoxoRobyn

The process was fairly similar for me. I found the lump, had mammagram and ultrasound. My specialist did the biopsy (to confirm tumor was cancer and also to confirm second area was DCIS) and then recommended mastectomy. I received the pathology results a week after surgery from the surgeon. Then saw medical oncologist and radiation oncologist before further treatment. Just to be clear on one point, if you were to get cancer in your other breast this would be a totally new separate cancer not a recurrence. The cancer you have now cannot move into the other breast. Once you have had breast cancer there is a slightly increased risk of having a second cancer begin in your other breast. It is very much a personal choice about whether to have a double mastectomy and depends on many factors. I thought at one stage that I should have had a double but my surgeon was very clear that I needed to begin chemo as soon as possible. Having a second mastectomy increases your chance of complications (infection, etc) and could delay chemo if you need it. Also she said that I may feel differently about it given more time, which is absolutely true. At this stage I am glad that I did not have the other breast off (I was diagnosed in May last year and finished chemo 51/2 months ago and radiation almost 4 months ago). I have been through a lot and still have about a 20% chance of recurrence. For me at the moment, I am happy to wear a breast form on my mastectomy side and continue to recover through physio and lots of exercise. I am glad I have a 'good side' to sleep on. There is a lot to consider and weigh up before making these decisions. Many people feel that they need to do it for piece of mind. I don't feel that way as my chance of recurrence is much higher than my chance of getting a new cancer in the other breast. Get lots of information before making your decision. I hope it goes well no matter what you decide. Deanne xxx

Thank you ladies....very helpful and reassuring to hear you both had a similar start to me. Yes Deanne, I think I need to do a bit more research on one or two. Do you suggest where I can find good info about it as I am deliberately not looking at Dr Google. Had a very quick look on this sight last night but didnt find any info on it. Thanks again, Donna

My situation did not allow for a lot of time to research before i had my first surgery. I figured that it was more important to treat the life threatening cancer i had than to remove a healthy breast. As my surgeon said i could always have this done at another time or in conjunction with reconstruction if i chose. I asked my oncologist to give me the statistics as a guide. It is such a difficult decision but I wanted to base my decision on facts as much as possible. The fact is for me, removing my other breast is not going to do much to improve my odds of not getting breast cancer again. I think unless you have a high risk of getting cancer in the other breast (some people do) that you really need to think about what you will achieve by a second mastectomy. Will it give you peace of mind? Will it make a difference if you want to do reconstruction? These are questions that your surgeon may be able to help with. If in doubt don't do it now. Give yourself time to research, you can always have it done later, but once you remove your breast, even the best reconstruction will never make it the same as a real breast. If only we had a crystal ball! Best wishes and take care. Deanne xxx

Advice please... | BCNA Online Network

62 Replies

Chixon
Member
12 years ago
Thanks for your info. (I think it worked). Chemotherapy is a scary thing..probably the fear of the unknown...particularly the side effects. Thanks again. Chris.xx
Deanne
Member
12 years ago
If you click on the My blog icon under your My profile box it will take you to your blog page. You then click on 'create a new post' and just type your post in. When you click to post this it will appear on the main page for everyone to see and be able to comment on. Hope you can work it out. Take care and hope chemo goes well for you. Deanne xxx
Chixon
Member
12 years ago
Not sure how to create a new blog post. No, I haven't had any response about the cold caps at all. I read somewhere that if you use a dark nail polish on your finger nails it helps protect them during Chemo!!!. I am trying to KIT myself out for things I may need. Next Friday will be my starting date. Thanks for caring. Chris.xx
Chixon
Member
12 years ago
Need some advice on scalp cooling caps to prevent hair loss during Chemotherapy. (recommended by my medical oncologist. ) Not sure if it is worthwhile or not. Does anyone had any information on this??? Also cost of same would be appreciated. Thanks. Chris.
Chixon
Member
12 years ago
I had x 2 Sentinel Nodes removed from both sides and x1 each side was positive for cancer. I 'm certainly not looking forward to the side effects of Chemo....I will just have to 'go with it' and rest when I need to. I have already lost 3kgs...through stress I'm sure. I have registered for the Look Good Feel Better program for the 18th August.. looking forward to going. I will buy some things online to cover my head and also hope to buy a wig, not sure where to go though ( I'm in Newcastle). My son is getting married on the 1st November so I will need a wig to wear. A good comment about synthetic wigs though. Lovely photos!!! Take care. Chris.x
Gerbera67
Member
12 years ago
Hi again Chris. Here is the pic of me in my wig on the day of the Look Good Feel Better workshop after the make up has been applied. Trust me, after being 'done up', its a much better look than the alternative LOL. :) Also including a pic in one of my hats.

Donna
Chixon
Member
12 years ago
Thanks.... I will go and have a dental check. I hadn't thought that Chemo would effect me that way. I'm looking forward to starting treatment in one way....but am scared stiff of the side effects!!!!I . (The fear of the unknown). It is a rotten thing this cancer....overwhelming anxiety...then start to feel positive....then back to the start. 'Headcovers' sounds good. I may also have to buy a wig as my son is getting married on November 1st....and I would like to look nice for him. Have a lovely weekend. Chris.x
Chixon
Member
12 years ago
Thanks.... I will go and have a dental check. I hadn't thought that Chemo would effect me that way. I'm looking forward to starting treatment in one way....but am scared stiff of the side effects!!!!I . (The fear of the unknown). It is a rotten thing this cancer....overwhelming anxiety...then start to feel positive....then back to the start. 'Headcovers' sounds good. I may also have to buy a wig as my son is getting married on November 1st....and I would like to look nice for him. Have a lovely weekend. Chris.x
Chixon
Member
12 years ago
I saw my medical oncologist this morning. I commence Chemotherapy: Taxotere/Cyclophosphamide on Friday week. Has anyone been treated with this regime...not sure of side effects either. I have one treatment in three weeks over three months. Also any advice on SCALP COOLING hats???do they work on reducing hair loss during treatment. Any advice on hats, wigs, scarves etc..also any preperation for Chemo? Thanks in advance. I hope you are OK after your dental appointments Tonya. (I must admit..I only go to the dentist if I really have to) good luck with your ultrasound as well. Take care everyone.xx
Chixon
Member
12 years ago
I saw my medical oncologist this morning. I commence Chemotherapy: Taxotere/Cyclophosphamide on Friday week. Has anyone been treated with this regime...not sure of side effects either. I have one treatment in three weeks over three months. Also any advice on SCALP COOLING hats???do they work on reducing hair loss during treatment. Any advice on hats, wigs, scarves etc..also any preperation for Chemo? Thanks in advance. I hope you are OK after your dental appointments Tonya. (I must admit..I only go to the dentist if I really have to) good luck with your ultrasound as well. Take care everyone.xx

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