Forum Discussion
Shazinoz
14 years agoMember
What has helped you through your journey?
I thought I would start a post to see what has helped people through their journey, so that maybe something might help others.
I will start with:
- Ahh Bra Type tops - I found these great post op and still now, they are comfortable, and great.
- Calypo Icy poles (the mini ones) - I have found these great for my VERY sore tongue.
- Mini spray perfume - I got one of these for my Mum who was VERY self conscious after her chemo made going to the toilet smelly, She used it as a toilet spray when out. As was recommened on another post - (DO NOT use your favourite perfume smell, just buy a cheap one you can stand the smell of. If needed).
- Waterless Hand Sanitiser - I use this all the time when out. I try to keep my hands as clean as possible.
- Vitamin E liquid capsules - I use these on my scars, simply pierce one capsule and rub the contents on yuor scars (once they have healed of course), it works great, and is VERY low allergy.
So there is my first couple of contributions, I hope one or more helps somebody else, and I hope other will add too.
107 Replies
- Mich_xMember
Something that is helping me through at the moment is my bath. I have a bath with epsom salts to try and help with the pain. I also use it as a destressing time. I make sure water is high enough so when I am laying out flat my ears are under the water. It blocks out all sounds or muffles them to be a nice sound and then I just chill, totally relax, concentrate on my breathing and I feel wonderfully refreshed and renewed after my bath.
Mich xo
- Mich_xMember
Something that is helping me through at the moment is my bath. I have a bath with epsom salts to try and help with the pain. I also use it as a destressing time. I make sure water is high enough so when I am laying out flat my ears are under the water. It blocks out all sounds or muffles them to be a nice sound and then I just chill, totally relax, concentrate on my breathing and I feel wonderfully refreshed and renewed after my bath.
Mich xo
- justtrinaMember
Ditto to the Bio-oil. It's been a month since my surgery and I've had one chemo treatment... I use the Bio-oil on my scars, the dry tissue on my breast and then I rub it into my hands and finger nails.. what a difference.
I'm also using Billie Goat Soap Moisturiser on my arms and legs.. it's light and has a pleasant but does not have an overpowering smell.
- CarolMember
Most things have been covered already so my only additions are things I still do 6 years post surgery:
- Bio-oil which I stll use occasionally and
- Extra chewing gum to help with that dry metallic mouth while on chemo and had made my teeth so nice with lack of plaque that my dentist now makes favourable comments - it means I get both a clean mouth & sweet hit to my mouth
- company of a dog (at the moment Mum & Dad plus 6 Japanese pups I need to sell) becoming a fluffy grandma has been great - now for the real human ones in a few years!
- exercise be it a short walk, post BC class or anything to keep you fit & healthy. Just take it easy while on chemo ecpecially if you lose feeling in feet and hands like so many of us did on taxol or taxotere
- Mich_xMember
Probiotics for tummy problems and thrush. I found yoghurt every day wasn't enough, especially as I have been on antibiotics for so long doesn't help.
There is a probiotic that doesn't need to be in the fridge now which is great so you can take it with you if travelling and having to stay over somewhere for treatments etc. or just to have it on your bench for when you take your other meds in the morning.. I just take one a day.
Mich xo
- chipmunkMember
Donna
Here! Here! perfectly said in your blog... :)
Love to you Julie XX
- donnarMemberWhat great suggestions from you all! Love the sound of the aaarrrr bra I've been thinking about getting one and you've twisted my arm.. Here's what's helped me. This wonderful site where you can just be yourself warts and all Longs walks with my cheeky jack russell terrier. He"s such a funny dog and I adore him. My family, close friends and work mates. My medical team and nurses at mercy breast clinic and the mercy hospital. More recently Peter Mac Bandanas and scarves. Love that it's getting cooler and we have all these choices, plus scarves are such a fashion accessory now. Bottled water. The occasional glass or 2.. Of wine with my friends. Eating what I want when I want. PJ's!! My iPad, notebook and phone Internet for when I want to research stuff. Try to avoid being doctor google though. Learning to say no to going out for dinner with friends too much. I'm better in the day but come night time I like to rest and have me time. Taking small trips interstate to visit friends. It's been a huge tonic for me. Being open and honest with your feelings. It's ok to be vulnerable. Love Donna xx
- donnarMemberWhat great suggestions from you all! Love the sound of the aaarrrr bra I've been thinking about getting one and you've twisted my arm.. Here's what's helped me. This wonderful site where you can just be yourself warts and all Longs walks with my cheeky jack russell terrier. He"s such a funny dog and I adore him. My family, close friends and work mates. My medical team and nurses at mercy breast clinic and the mercy hospital. More recently Peter Mac Bandanas and scarves. Love that it's getting cooler and we have all these choices, plus scarves are such a fashion accessory now. Bottled water. The occasional glass or 2.. Of wine with my friends. Eating what I want when I want. PJ's!! My iPad, notebook and phone Internet for when I want to research stuff. Try to avoid being doctor google though. Learning to say no to going out for dinner with friends too much. I'm better in the day but come night time I like to rest and have me time. Taking small trips interstate to visit friends. It's been a huge tonic for me. Being open and honest with your feelings. It's ok to be vulnerable. Love Donna xx
- VicxMember
Things that have got me through:
My wonderful new husband who never stops reminding me that he loves and married me and not my breasts.
My gorgeous daughter who cleaned and watered and did all the things I couldnt do for so long.
The best boss and workmates in the world, who let me come back in my own time and tolerated my ups and downs.
Learning to ask for help which I found INCREDIBLY difficult.
And the wonderful staff at the Cairns ROQ clinic, so caring and human in their treatment of me.
Hope all goes well for all of us from here on,
Vicki
- VicxMember
Things that have got me through:
My wonderful new husband who never stops reminding me that he loves and married me and not my breasts.
My gorgeous daughter who cleaned and watered and did all the things I couldnt do for so long.
The best boss and workmates in the world, who let me come back in my own time and tolerated my ups and downs.
Learning to ask for help which I found INCREDIBLY difficult.
And the wonderful staff at the Cairns ROQ clinic, so caring and human in their treatment of me.
Hope all goes well for all of us from here on,
Vicki