Lymphoedema podcast & general

I had an awful time with an all in one compression garment which effectively puffed up my hand and fingers. Turned out the whole thing was badly fitted. A Jobst arm and seperate hand, with fingers to
mid lower joint, works much better for me. I've found it took quite a bit of trial and error to get the right combination and type unfortunately. But very stable now. 

Can anyone recommend a great massage therapist who does manual lymphoedema massage in Perth & surrounding area plus any other advice greatly received. 

Hello @wallis3036
You can use the following link to search for a lymphoedema practitioner, you need to add your postcode
https://www.lymphoedema.org.au/the-register-updated/find-an-ala-accredited-practitioner/

I’m also having trouble with my garment . I went back after the first garment seemed to be too tight and my thumb was going numb . I’ve since got a second s garment from the Lymphodema clinic but my knuckles swell every time I wear it :(

Made to measure is more expensive but can be better. My first made to measure was appalling (see comment above) but my next one (and still current supplier) does a great job and the measuring is excellent. Unfortunately it's difficult to know before you put the thing on!  And it's pretty individual too. Trial and error worked for me but I really resented throwing out $400 dollars worth! 

Managing lymphoedema takes more then wearing a sleeve. I have to do self massage and a scedule of movement to move the lymph fluid at least twice a day. Some days there is extra fluid in elbow, or a finger , or whereevr - so that has to have extra attention, usually roller ball to move  the fluid. if i don't it just gets firmer and sore. as long as i don't let it stagnant ., my arm is pain free and smaller. as soon as i slack off it swells. that includes if i don't maintain stretches for arm and shoulder and neck flexiblity. takes a lot oof hard work and years to learn what is right for me, and custom sleeve, mobiderm cleeve, compression pads, mobidern  sections... and a whole heap of other tips and trick i have learnt along the way. But its worth the effort to keep it comfortable. A great facebook group is Living with Lymphoedema Australia & New Zealand for picking up  tips and ideas.

New support group ,second ever meeting next week. #lymphoedema #supportgroup #sutherlandshire

Agreed that self massage and exercise is important. I like a monthly professional massage with my lymphoedema therapist too. 6 years in, my condition is not particularly volatile but consistency in management does pay off. I have never experienced any soreness, heaviness or limitations, which makes a difference. 

@Loobylou