Lymphoedema podcast & general
Hi, I just wanted to say thank you for organising last nights pod cast. I have lymphoedema and the biggest thing that came out of it for me was that many of us don’t have that initial measurement done...
Forum Discussion
Managing lymphoedema takes more then wearing a sleeve. I have to do self massage and a scedule of movement to move the lymph fluid at least twice a day. Some days there is extra fluid in elbow, or a finger , or whereevr - so that has to have extra attention, usually roller ball to move the fluid. if i don't it just gets firmer and sore. as long as i don't let it stagnant ., my arm is pain free and smaller. as soon as i slack off it swells. that includes if i don't maintain stretches for arm and shoulder and neck flexiblity. takes a lot oof hard work and years to learn what is right for me, and custom sleeve, mobiderm cleeve, compression pads, mobidern sections... and a whole heap of other tips and trick i have learnt along the way. But its worth the effort to keep it comfortable. A great facebook group is Living with Lymphoedema Australia & New Zealand for picking up tips and ideas.