Forum Discussion
Johnann
7 years agoMember
Lymphoedema podcast & general
Hi, I just wanted to say thank you for organising last nights pod cast. I have lymphoedema and the biggest thing that came out of it for me was that many of us don’t have that initial measurement done...
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Kristen
7 years agoMember
Managing lymphoedema takes more then wearing a sleeve. I have to do self massage and a scedule of movement to move the lymph fluid at least twice a day. Some days there is extra fluid in elbow, or a finger , or whereevr - so that has to have extra attention, usually roller ball to move the fluid. if i don't it just gets firmer and sore. as long as i don't let it stagnant ., my arm is pain free and smaller. as soon as i slack off it swells. that includes if i don't maintain stretches for arm and shoulder and neck flexiblity. takes a lot oof hard work and years to learn what is right for me, and custom sleeve, mobiderm cleeve, compression pads, mobidern sections... and a whole heap of other tips and trick i have learnt along the way. But its worth the effort to keep it comfortable. A great facebook group is Living with Lymphoedema Australia & New Zealand for picking up tips and ideas.
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