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Harlee's avatar
Harlee
Member
9 years ago

Lymphoedema and insect bites

All the information I can find about lymphoedema says to avoid insect bites, which is good advice - until you have been bitten.

I don't have lymphoedema but had 4 lymph nodes removed with my surgery so I have been told that I am at risk. I am also allergic to most insect bites and stings. Great combination.
Last week I was bitten by an ant on my at risk arm. I immediately took anti histamine and thought everything was ok until the next morning when I woke with a 10cm swelling around the bite. I tried to make an appointment with either of the GPs I routinely see but neither were available. I had also run out of anti histamine - oops.
So I decided to go to the medical centre where you supposedly don't need appointments and also pick up some more anti histamine. I stupidly asked for advice at the pharmacy but they didn't want to sell me anything and said I needed to see a doctor. Fine - I only went to the pharmacy first because I had to walk past it to get to the medical centre. So I arrive at the medical centre and despite the sign on the door saying no appointments necessary it turns out that I did need an appointment and I couldn't get one for 3 days. I called 2 more medical centres but apparently most the doctors were at a conference or something because no one could see me that day. 
At this point I was starting to panic just a little. I tried to call the breast nurse who was unavailable. The swelling on my arm was now at about 25 cm and rapidly getting worse. I've been allergic to insect bites for years and had never had a reaction like this. I considered going to the emergency department of the local hospital but I was concerned about sitting there for hours waiting for treatment.
So I went to a different pharmacy (hid my arm) and bought more anti histamine and then went home and started to treat the swelling myself. By this time I was swollen from my wrist to my armpit. I elevated my arm and alternated using ice packs and my compression sleeve (I use this when travelling) and did the lymphoedema massage I had been shown when my sleeve was fitted and the swelling started to reduce. After several hours it was back to about a 5 cm swelling which is my typical response to an ant bite. 
Interestingly yesterday I was bitten again but this time on my other arm. I took anti histamine right away and this morning I have a small swollen area about 3-4 cm. 

I've already decided that next time:
1. I will NEVER EVER run out of anti histamine again. I now have multiple packets - in my handbag, in my travel toiletries, in my gym bag, and in the medicine drawer at home. 
2. I will NOT run around trying to visit doctors and buy drugs. If necessary I will call a friend who can do all that I will remain still and treat the swelling. 
3. I have made an appointment with my doctor next week to review what happened.

So has anyone else had this experience? 
What are we supposed to do if we are unlucky enough to be bitten on our at risk arm? 
  • Not grumpy just honest!  I can be very straightforward and honest in my conversation, particularly with bureaucrats and they don't cope as their vocabulary is what I term weasel words - honesty is a good policy! 
  • Hi ladies, on the insect bite subject, I got a number of bites on my arms, stomach, back and neck just over two weeks ago.  Had my first chemo 12 days ago and the bites got worse (redder, more swollen and itchy) afterwards and are not going away.  I already take phenergan everyday so may be worse if I didn't.  Anyone else had this issue?  Lucky for me no lymphoedema of my surgery arm but feel for you ladies that do.
  • Hi Cate, if there is any chance they are spider bites, you need to get some help. Spiders, in addition to venom, introduce some bacterial which are not good when you are comprised.
  • Thanks Zoffiel, I saw my GP yesterday and she didn't know why they are not going away but said to keep an eye on them and the rash on my hand where the canular was as my immunity is very low and they aren't starting injections until my next chemo. She never mentioned spider bites.
  • It's possible to test if they are spider bites (blood test) but apparently only in the first day orvso. I got some similar sounding bites on my neck, they took some time to go away but no apparent side effects (they were on my lymphoedemic side).
  • Ouch!  I'm lucky enough not to have a problem with lymphodema but I was bitten by a tick on my hairline once and one side of my face swelled up!  It was awful, I walked into the doctor and first thing she said was "what happened to you??" :)
  • @"Harley B", so interesting would not of thought an insect bite would affect us like that. Good to know. Thank you for sharing.
    @Zoffiel, with everything you are going through you still have your sense of humour. Everything you said is so true. Thank you for the giggle I really did need it. All the best  :)