Hi I have lymphedemia in right arm as a result of removal of lymph nodes and radiation . I have been investigating a lymph node transplant pioneered by Dr Corinne Becker of Paris ( she is on you tube) . She has said for me to go to Paris for the operation with a breast reconstruction. She has been doing this for 20years in Europe. i have heard that one Australian woman underwent this operation. I also know Macquarie University Cancer Institute is offering this surgery and I intend to follow up there. Does anyone know more on this or have information about medical treatment overseas?

There is a member on here called tovith. She has had lymphedema surgery in Australia. Think it was some sort of anastomosis. She has also had a recon. Have a feeling her Dr is a specialist in the area. Maybe send her a message. Good luck. Paula

Thank you for the information ill try to contact her

Good luck. Let me know how you go. I have lymphedema but thankfully well under control. Took two years. Paula

Hi anyone who is concerned with lymphedemia treatment. I have had an autologous Lymph node transplant with Dr Becker in Paris two days ago. My right arm was huge and my lumpectomy and axillary nodes removal left a huge hollow . She transplanted yhe nodes with a fatty flap from my lower abdomen and groin. Im recuperating at my apartment with a good friend who travelled with me to nurse me . The procedure was difficult for her as she ssid the area was very fibrotic and she used 10 blades (??) I have a reconstructed right boob its heautiful. And time will tell if the lymphedemia retreats I have paid for this myself and just received a shock as The surgery was more difficult Im going to have to approach relatives to cover ectra money. Does anyone know aboit reimbursement from Australia government for costs incurred for operstions not pergormed in Australia RegardsBarbara

Lymphedemia Surgery treatment | BCNA Online Network

22 Replies

Sarah_P
Member
11 years ago
That is so good to hear Barbara. What a relief for you to have things heading in the right direction at last. I hope you are resting well and continue to heal after all that you have been through.
Sarah
xx
mum2jj
Member
11 years ago
That sounds very promising. Bet it's good to be home :) Paula.
mum2jj
Member
11 years ago
That sounds very promising. Bet it's good to be home :) Paula.
barbara2101
Member
11 years ago
Hi all Back in Australia now just gone 3 weeks since ALNT and arm is responding under regular drainage and complex bandaging. My impedance figures have gone from 80 to 55 and lose of cms around arm length Which is all so unbelievable Hopefully things will keep improving
barbara2101
Member
11 years ago
Hi all Back in Australia now just gone 3 weeks since ALNT and arm is responding under regular drainage and complex bandaging. My impedance figures have gone from 80 to 55 and lose of cms around arm length Which is all so unbelievable Hopefully things will keep improving
mum2jj
Member
11 years ago
Have been away and just saw your post. WOW. That's amazing you have travelled to,Paris for the surgery you needed. Such a shame you couldn't have it in OZ. Did you have the lymph node transfer at the same time as your reconstruction? It sounds like you had it with either a tram flap or a DIEP? Although maybe not as you are recuperating in an apartment already. When you are feeling better would love to hear about how your breast was reconstructed at the same time. Sounds amazing. I hope you can somehow find some financial relief. Wishing you a great recovery. Paula x

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Lymphedemia Surgery treatment

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