Forum Discussion
barbara2101
12 years agoMember
Lymphedemia Surgery treatment
Hi
I have lymphedemia in right arm as a result of removal of lymph nodes and radiation .
I have been investigating a lymph node transplant pioneered by Dr Corinne Becker of Paris ( she is on you tube) . She has said for me to go to Paris for the operation with a breast reconstruction. She has been doing this for 20years in Europe.
i have heard that one Australian woman underwent this operation.
I also know Macquarie University Cancer Institute is offering this surgery and I intend to follow up there.
Does anyone know more on this or have information about medical treatment overseas?
22 Replies
- Sarah_PMember
That is so good to hear Barbara. What a relief for you to have things heading in the right direction at last. I hope you are resting well and continue to heal after all that you have been through.
Sarah
xx - mum2jjMemberThat sounds very promising. Bet it's good to be home :) Paula.
- mum2jjMemberThat sounds very promising. Bet it's good to be home :) Paula.
- barbara2101MemberHi all Back in Australia now just gone 3 weeks since ALNT and arm is responding under regular drainage and complex bandaging. My impedance figures have gone from 80 to 55 and lose of cms around arm length Which is all so unbelievable Hopefully things will keep improving
- barbara2101MemberHi all Back in Australia now just gone 3 weeks since ALNT and arm is responding under regular drainage and complex bandaging. My impedance figures have gone from 80 to 55 and lose of cms around arm length Which is all so unbelievable Hopefully things will keep improving
- mum2jjMemberHave been away and just saw your post. WOW. That's amazing you have travelled to,Paris for the surgery you needed. Such a shame you couldn't have it in OZ. Did you have the lymph node transfer at the same time as your reconstruction? It sounds like you had it with either a tram flap or a DIEP? Although maybe not as you are recuperating in an apartment already. When you are feeling better would love to hear about how your breast was reconstructed at the same time. Sounds amazing. I hope you can somehow find some financial relief. Wishing you a great recovery. Paula x
- Sarah_PMember
Hi Barbara
I agree with Susan. You focus on becoming well and making every success of this surgery. Perhaps you are a trail blazer for other Australian women in this field. You can show them how it's done and make such a difference to others (no pressure!). So you rest and recover. That's your only job for now. Looking after you.
My sister also suffered dreadfully with lymphodema, so I know a little of how challenging and painful it can be. I do feel for you. You must be so brave to even have the strength and conviction to travel so far to have this surgery. I think you must be a very special person, as is your friend. Such an honor for both of you to do this together.
Much love and many well wishes
Sarah
- barbara2101MemberThank you I am improving everyday