After 2 violent allergic reactions to the Docetaxel component of my TC chemo, my medico team has given me 2 options.....1. Be admitted and do desensitisation and then continue original regime,if all goes well. 2. Change over to AC chemo.Yes, the decision is up to me but hashing out things on this wonderful forum has helped me so much already. I appreciate any and all comments. Thankyou all so much.For anyone that has read my prior comments on other threads.....suddenly I don’t care less about my hair loss! Go figure! Lol.Best wishes to all.xxx

Glad to see that you've had inspiration from some on here. I agree 3%, you've gotta wonder don't you, however, you are giving it your best shot and keeping up your frequent flyer points at ED...…….damn! Hope that is your last visit there, not pleasant!Best wishes for the balance of treatment, Take care

Yet again this forum has helped me! Thankyou all. No avail stats on desensitization so I have decided to change to AC. Big decision made. My medical team was also leaning towards that decision too. Now starts all the little extras but ! Surely it cant be any rougher than what Ive been through.....Anyway, i have until Thursday to gather strength and a calm mind and find some brand new big girl panties and then away we go !!!!!!!Tomorrow me thinks me have a BC free day......winery ? Royal Adelaide Show ? Beach walk ?Cheers to all.xxx

Thanks @Sister, yea, after much consideration i have decided to continue. Possibly my biggest hurdle is accepting that I actually had BC in my body. Like many , i have only felt pain, illness etc from surgery and treatment, NOT the cancer.I need to let go and be guided. That is difficult for me but im doing it. I ask too many questions etc. Your quote is very good. I must remember that I am fortunate to be having chemo as a mop up and not to reduce any cancer etc as many do. That i think is my answer.

Hi all, so had my almost mandatory visit to the ED over the long weekend just gone, for high temp. (Adel had a public hol) 12 hours in the ED because there was no bed in a ward for me. I’m sure you can all fill in the rest......Since my last post I have had 2 SUCCESSFUL rounds of AC. Yes, that is great. But the 2 hiccups I have had along the way have broken me. Why bother for 3% ( that is my personal % only for how much AC adds to my survival). There are so many variables and no guarantees for anything. Humpty is broken, this morning I’ve decided to keep going with chemo and see what humpty looks like at the other end. I continue to be grateful for everything in my life, family, friends, free cancer treatment, and a roof over my head. But I’ve only just really worked out that I am allowed to feel sad and frustrated and it doesn’t mean I’m ungrateful. I thought I knew a lot about myself, this BC roller coaster has taken me thru twists and turns that I didn’t know existed.I have also been reading some of your old posts, there’s some truly “tuff chics” on this forum. Thanks again. Xxx

@Fletch - I am feeling it with you. This shitty disease just keeps on giving ..... and it is perfectly fine to be sad & frustrated & downright angry at times! Vent away when ever you need it ..... we are here for you xx

Looking for reassurance please! Big decision to make......

38 Replies

Sister
Member
8 years ago
AC is cumulative, too but maybe not such a big problem if you're not allergic.
kmakm
Member
8 years ago
@Piccme I found the Docetaxel side effects cumulative as well.
Piccme
Member
8 years ago
Hi @Fletch, if you were to have desensitisation how many more cycles would you have left? I didn’t cope well with Docytaxol, my first being the worst. I too had an allergic reaction with my first. I then had dose reduction for the next 2. I still struggles though. I had three cycles in total after 3 FEC cycles. Personally, I found that side effects accumulated with docytaxol, the last being the worst . But we all react differently. As the other girls suggest, it is best to be guided by your team. I ended up getting through the treatment. At the time I wasn’t sure if I could. Just remember, you now know how you react to docytaxol and your team are there to help you get through. No matter which treatment path you go down, we are all here to support you. Please let us know which path you choose and how you go. Xx
Vangirl
Member
8 years ago
@Finch it's hard to say if you would have the same reaction but I had a really hard time on AC. I spent days per cycle unable to leave my bed and only got through 3 of 4 cycles as I couldn't face the last one. Just my two cents worth...
pammiesyd
Member
8 years ago
@Finch I would ask the onc, if I were your partner, what would you recommend?
Finch
Member
8 years ago
Oh no, another bad reaction , sorry to hear Fletch. I love it how these oncologists give back these hard decisions to us . Have they advised you what they think you should do? Xxx
Sister
Member
8 years ago
Have they told you what the difference is to change to AC and how it will effect outcomes? I had AC and to be honest, I'm not sure if it's worse than what others have had.
Afraser
Member
8 years ago
I'd be guided by your medical team but.....what does the desensitisation entail? Are there any likely side effects of that? What is the success rate estimated to be? If it doesn't work, you are presumably on to A/C anyway, so you would want to think the desensitisation is likely to work and that it won't have any nasties. Otherwise remember that while most people dislike A/C, some like me worked through, with no nausea or fatigue. Best wishes.

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Looking for reassurance please! Big decision to make......

38 Replies

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