Hi AllI have recently changed tablets from Arimidex to Letrozole as was having terrible side effects. Hopefully side effects won't be so bad on these new tablets!! One thing that has happened since I started taking the Letrozole is bad night cramps in my legs. Has anyone else had this problem and if so how did you deal with it? I am not a happy camper at present! Have a great night

I went off the Tamoxifen straight on to Letrozole the next day. Bad idea. It was like I was double dosed or something. I left it a week and then went back on the Letrozole and so far it has been good.

Hi AllI decided to come off the tablets after two years. The symptoms were too bad for me. I told the Oncologist that I wanted quality of life. I have been off them since March and feel great. I am believing all will be well XX

I've heard lots of women suggest magnesium seems to help. So far for me no noticeable side effects on letrozole. ..fingers crossed.

I am already on magnesium tablets plus I spray magnesium all over my body through the day. Not helping me much! Good to hear you have had no noticeable side effects. Good stuff. I don't have any other side effects at present but have only been on them for 8 days. I wondered if I take the tablets at night would it help. I used to do that with the Arimidex.

I've found I tolerate Exemestane (Aromasin) better than the other two. It is a slightly different drug and not my oncologist's first choice for me, but even though I was at my wits end I was reluctant to give up until I had tried all the options. Better than nothing, I hope.

Letrozole | BCNA Online Network

21 Replies

Brenda5
Member
7 years ago
I went off the Tamoxifen straight on to Letrozole the next day. Bad idea. It was like I was double dosed or something. I left it a week and then went back on the Letrozole and so far it has been good.
Doin_it
Member
7 years ago
@kitkatb same. I’ve had to shave my legs a few times & my arms are resembling spider legs everywhere 😂
kitkatb
Member
7 years ago
Yeah @Doodoo I lost just over half of them on both sides like the outside half looked really odd. But they come back quickly. Just looking at my legs today and thinking might have to give them their first shave in months today.
Doin_it
Member
7 years ago
@kitkatb really weird!! Yuk!! I still have some. Eyebrows are looking very odd! Hope mine grow back fast too 😳
kmakm
Member
7 years ago
@Sister Aching stopping is most excellent! Long may it last. K xox
kitkatb
Member
7 years ago
@Doodoo, Lost eyebrows at 8 weeks post chemo but came back soon after. Really weird.
Sister
Member
7 years ago
I had aching legs in the evening on letrozole which I have been taking since 9/8/18 - similar to during chemo. That went on until a couple of weeks ago. Now, it appears to have stopped. My hands aren't as sore now, either. I don't know if it's a different brand or I've just settled in, or just an anomaly.
Blondy
Member
7 years ago
I've been on Letrozole since the beginning of May and can't say I've noticed anything too bad. I have been a migraine sufferer on and off for nearly 50 years but I do now get very quick onset headaches which ordinary painkillers won't touch. The only way at present is to take another dose after an hour instead of waiting 4 hours. Our band had a gig when I got a headache before I left home, took 2 painkillers an hour later at the venue I went to a nearby chemist who couldn't suggest anything stronger as 6 months ago laws were changed which meant nothing stronger available without a script so he said it would be ok to take another dose Miraculously the headache went I suppose all of us react in different ways with certain similarities to these ongoing hormone treatments. I'm just grateful that we at least have them. It's all a bugger isn't it.
kmakm
Member
7 years ago
Yes!
Doin_it
Member
7 years ago
So far so good on Letrozole, but it has only been 4 weeks. Fingers crossed it stays that way. I have started losing my eyelashes & eyebrows 8 weeks after tc. Did anyone else?