Forum Discussion

lisa36718's avatar
lisa36718
Member
12 years ago

Can you help? Kadcyla!

I had two sessions of Kadcyla. The first one gave me fevers and headaches... worst headaches ever - as if i was about to faint. same thing with the second session. but I only experience the side effects after 3 days of receiving the drug. Now I have bad joint paints, leg cramps! Is it always like this? Since i was the first patient they ever treated with Kadcyla, they seem to be learning from me....who can i ask regarding this drug? Can you help?
joint-pain
side-effects

1 Reply

  • Pamelamary's avatar
    Pamelamary
    Member
    12 years ago

    Dear Lisa,

    I had 3 cycles of Kadcyla almost 3 years ago, and had headaches for the day after, but few other symptoms. Unfortunately, the drug didn't work for me.

    However there are many other women who have had this through clinical trials and should be able to give you more feedback. There is also the site Her2support.org which is based in the US, where there is lots of information available.

    I hope your side-effects settle down and that Kadcyla works well for you.

    Best wishes.... Pam