crafty
7 years agoMember
Bone pain
hi,
I had Ristempa on both my 2nd and 3rd course of chemo, refused it for my last chemo due to the crippling bone pain I had for several days from day 6-9, then managed with endone for the rest of the cycle. My last dose of chemo was just before xmas.
My oncologist is aware of this and said at least 1yr, and just wrote me another script for endone. I have been mulling over this since she said this and want a better option.
My question is how long has others found their bone pain had hang around? And any advice on how to manage it ongoing? I do not want to continue taking endone for a long time. The pain has settled in my lower back, pelvis, knees and ankles. I am best lying rather than sitting and heat pacs work too. But this is not always practical and prevents me from doing things.
Also we are about to go away for a holiday and i am trying to work out how I can survive the 7hr drive to Robe without copious amounts of endone, and we won't touch on the camping that my hubbie is adamant will be fine cos he will do everything...... I have decided to take that one as it goes, we have a camper trailer so at least we are not tenting it, but I am diverting.
I had Ristempa on both my 2nd and 3rd course of chemo, refused it for my last chemo due to the crippling bone pain I had for several days from day 6-9, then managed with endone for the rest of the cycle. My last dose of chemo was just before xmas.
My oncologist is aware of this and said at least 1yr, and just wrote me another script for endone. I have been mulling over this since she said this and want a better option.
My question is how long has others found their bone pain had hang around? And any advice on how to manage it ongoing? I do not want to continue taking endone for a long time. The pain has settled in my lower back, pelvis, knees and ankles. I am best lying rather than sitting and heat pacs work too. But this is not always practical and prevents me from doing things.
Also we are about to go away for a holiday and i am trying to work out how I can survive the 7hr drive to Robe without copious amounts of endone, and we won't touch on the camping that my hubbie is adamant will be fine cos he will do everything...... I have decided to take that one as it goes, we have a camper trailer so at least we are not tenting it, but I am diverting.