The pain varies on managed with hot packs when lying on couch and vegging out on netflix (my now great friend again once the tennis has finished), other days vary from 1-4 a day. I try not to sit, or do too much in other activities, not that I can yet anyway. As this will have me maximizing the endone, so this impacts on me going out etc. The pelvis/back area is the worst. The pain varies every day. Sometimes its shocking once I wake, it really has no pattern or reasoning I can work out.
the oncologist said the pain will settle in an area seeing I have had the bone pain, sometimes of an old injury and take the 12-18mths to go. Once I had the Ristempa it never seemed to really go
The oncologist and GP don't seem bothered by the endone its more me. I don't believe its a good one to stay on long term, thought about the slow release but as I would need to take it everyday not keen to go there either, as I only want to take something if nothing else is working. I know I want everything.
I was taking no medication before I got on the BC roller coaster, except when I thought of an occasional multi vit. A friend suggested acupuncture and I thought yeah great idea, but later realised it won't help bone pain but will be good for the muscle pain in my legs. I will run the bath on bad days and have a nice soak, which helps too.
I will try the panadol oesto, next time we are in town for a chemist, I hadn't thought of that one. Trying to think of other alternatives. Hadn't thought of a pain specialist either as I keep thinking its early days and it could get better. thanks everyone
I get assessed next week for the rehab program so will ask those people for ideas as well