Forum Discussion
ellen
14 years agoMember
Arimidex
I have been reading through the blogs about Arimidex and found them very interesting. I have been on Arimidex for 6 months and up until 4 weeks ago, "side affects free" - until now that is.
I now have what appears to be the usual aches and pains in the legs and numbness in the hands, tiredness and headaches, so I guess I didn't escape at all I am just like all my other Arimidex sisters.
I will have to mention this to my oc next visit, but as so many others have said before at least I am here reading the experiences of others. It does help.
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244 Replies
- Bella314Member
it doesn't hurt :) turning 60 that is...
Sign in to react to this post - Bella314Member
Hi Ruth, thank you for your emails and offer of contact, I really appreciate it. I figure I have a bit of time to make up my mind re the masectomy, - hopefully being on Femara will provide some form of protection. I know it would be a relief, but to be honest, I'm just not quite ready to make that decision; I need to talk to some people re their experiences; and I'm hoping to do that at our local support group. I also apologise for not replying sooner; I find the messages I get from the BCNA website a bit confusing, and I think I've replied to everyone, and then find out I haven't! Sorry. I hadn't heard of Lynch syndrome until you mentioned it; you've certainly copped it. I am concerned about passing the gene to my sons, they haven't decided about being tested yet, and I respect their decision, whatever it is. We have a huge history of prostate cancer (which is linked to BRCA1 and 2); so I am worried; but try not to let it overtake. Off to spend a weekend with my cousins, so probably won't be near a computer until Monday. Take care, love, bella x
Sign in to react to this post - Bella314Member
Hi Ruth, thank you for your emails and offer of contact, I really appreciate it. I figure I have a bit of time to make up my mind re the masectomy, - hopefully being on Femara will provide some form of protection. I know it would be a relief, but to be honest, I'm just not quite ready to make that decision; I need to talk to some people re their experiences; and I'm hoping to do that at our local support group. I also apologise for not replying sooner; I find the messages I get from the BCNA website a bit confusing, and I think I've replied to everyone, and then find out I haven't! Sorry. I hadn't heard of Lynch syndrome until you mentioned it; you've certainly copped it. I am concerned about passing the gene to my sons, they haven't decided about being tested yet, and I respect their decision, whatever it is. We have a huge history of prostate cancer (which is linked to BRCA1 and 2); so I am worried; but try not to let it overtake. Off to spend a weekend with my cousins, so probably won't be near a computer until Monday. Take care, love, bella x
Sign in to react to this post - finitaMember
Bella,
don't pay attention to anyone that doesn't understand your happiness or gratefulness , I turned 62 last February and although I never celebrate or even worry about it, it is always good ...it means one more year on this beautiful planet earth . Many happy returns and may you live to be 100 !!
lots of birthday hugs and wishes
finita xxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Sign in to react to this post - finitaMember
Hi bella,
I am sorry to hear about your results, and as I don't know much about it , what I do know is that the ovaries as well as the breast are usually removed, but you will need to do more research and don't leave any stone unturned. As for my Brac test, they made it very clear that the fact that my sister died at the age of 47, was unfortunate and that there is no explanation, because my mother did survive. Also the fact that on my mother and my father side, all family members lived to old age and no cancer involved that is known ! I have four more sisters, and they said that if anyone of them were to be diagnosed with breast cancer, then and only then will they take my family into consderation. So, I will just leave it at that and pray for the best...in the meantime I just try to go on and forget . Also I still get a few side effect from the arimidex, I have gained 5 kilos but it is stable , and pains and aches but winter is not helping , so I use lots of heat packs . I have recetly been put on Lovan , anti-depressant and anti -irritability...because my moods swings were getting bad...two weeks on, and so far I feel like I just want to sleep for ever but already I am feeling more relaxed, and that is good. Good luck with your research and all the best ...keep in touch .
Love and hugs
Finita xxxxxxxxxxxxxx
Sign in to react to this post - finitaMember
Hi ruth,
I am so very happy for you but do take care and don't over do things ...what a blessing !!
lots of hugs
Finita xxxxxxxxxxxxxxxxxxxxxx
Sign in to react to this post Hello again Bella, I also forgot to mention that I turn the big 60 next Month.
Sign in to react to this post- Bella314Member
thank you
Sign in to react to this post - KathleenTMemberHi Sue If you check with your doctor, everyone, privately insured or not, are entitled to a Mental Health Extended Program, which means you get several counselling appointments, usually with a psychologist. I have had it once before, & found it very beneficial. If you go through your GP and ask for it, they go through various things ( like a serious of questions to "measure your level" of depression/anxiety, then get the ball rolling about referring you to someone. This is the easiest way. Lets know how you go. Take care Love from Kathleen xSign in to react to this post
- skarch33Member
Hi Kathleen -I agree to the scrolling -and have seen it 'both ways' due to being relatively new to this site. Older posts are certainly very good and I've picked up a lot of hints and helps through them . However..you I do get a message that a new comment has been sent and I had previously deleted these as all comments seem to be old! I am going to chat to our Perth coordinators (the lovely Michelle & Chris) and see if they can give the hint that newer posts would be better first -am not very computer literate myself so don't know how difficult this would be ...but there are plenty of tech smart people there that could help I'm sure!
In the mean time..I've found some of the bits about needing emotional help good -I get very down and do need to see someone who knows so am going to contact the local Cancer Council?? would that be who I try?...sometimes the brave face needs to give in to a crack or two so maybe help is needed!
cheers, Sue
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