Forum Discussion
ellen
14 years agoMember
Arimidex
I have been reading through the blogs about Arimidex and found them very interesting. I have been on Arimidex for 6 months and up until 4 weeks ago, "side affects free" - until now that is.
I now have what appears to be the usual aches and pains in the legs and numbness in the hands, tiredness and headaches, so I guess I didn't escape at all I am just like all my other Arimidex sisters.
I will have to mention this to my oc next visit, but as so many others have said before at least I am here reading the experiences of others. It does help.
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244 Replies
Hello again Bella, I also forgot to mention that I turn the big 60 next Month.
Sign in to react to this post- Bella314Member
thank you
Sign in to react to this post - KathleenTMemberHi Sue If you check with your doctor, everyone, privately insured or not, are entitled to a Mental Health Extended Program, which means you get several counselling appointments, usually with a psychologist. I have had it once before, & found it very beneficial. If you go through your GP and ask for it, they go through various things ( like a serious of questions to "measure your level" of depression/anxiety, then get the ball rolling about referring you to someone. This is the easiest way. Lets know how you go. Take care Love from Kathleen xSign in to react to this post
- skarch33Member
Hi Kathleen -I agree to the scrolling -and have seen it 'both ways' due to being relatively new to this site. Older posts are certainly very good and I've picked up a lot of hints and helps through them . However..you I do get a message that a new comment has been sent and I had previously deleted these as all comments seem to be old! I am going to chat to our Perth coordinators (the lovely Michelle & Chris) and see if they can give the hint that newer posts would be better first -am not very computer literate myself so don't know how difficult this would be ...but there are plenty of tech smart people there that could help I'm sure!
In the mean time..I've found some of the bits about needing emotional help good -I get very down and do need to see someone who knows so am going to contact the local Cancer Council?? would that be who I try?...sometimes the brave face needs to give in to a crack or two so maybe help is needed!
cheers, Sue
Sign in to react to this post - KathleenTMemberHi Bella This is good news, that finally they could work it out for you, but very frustrating they focused just on your ovaries. Might be good to write a letter and explain your concerns. It could be that it wasn't explained to you sufficiently, or might even be good to get another opinion. Just a thought Congratulations on your recent birthday! Cheers Kathleen xxSign in to react to this post
- Bella314Member
I agree about the scrolling. I've found a quicker way to get to the latest posts, but it's still a bit cumbersome; just go down to the bottom of the first page and click on the last number (currently 4), this will take you to the last page, and then you just scroll down to the bottom of it (I just drag the bar at the right of the page, it's quicker). Hope this helps :)
Sign in to react to this post - KathleenTMemberIt's a real pain, isn't it? About the scrolling thing Candy! I'm going to try again to mention it to admin. It wastes so much time(& Internet gs!) to be doin the scrolling all the time! Cheers KathleenSign in to react to this post
- Bella314Member
thanks Candy, I'll try to find your blog
Sign in to react to this post - Blossom59Member
Hi Bella,
I have just done a blog on this whole genetic testing, I have started the new blog as I cannot figure how to get to the last page without scrolling through all the other old blogs on this Arimidex blog.
Hope we can start up some information sharing with the new blog. I have a few questions to ask you.
Candy
Sign in to react to this post - Bella314Member
Hi ladies, haven't posted for a while, have had trouble with my computer, and also with actually posting replies. Well the test result came back, and I have the BRCA2 mutation. To go back a bit, I mentioned to my oncologist that my cousin and i believed there was a genetic link to the cancers in our family, - 6 out of 8 first cousins have all had cancer, and all our fathers had it, as did our grandfather. The oncologist response was "how many with breast cancer", and I said "just me and one cousin"; he said "pffft (I kid you not), there is no genetic link. and I said, well I think there is and I would like to do something about it. He was reluctant, but asked me if I would like to see a genetic counsellor; yes says I. When I saw the counsellor, she asked me for my family history of ALL types of cancers (quite a lot of prostate cancers, my brother died from it at age 54). She then referred the family history to the professor, who said based on it, he would offer the test to me. When it came back positive, I was almost relieved to be proven right; but now it opens a can of worms re health management. The professor recommended ovaries and fallopian tube removal (and I have an appt with surgeon re same); but not removal of breasts? I am a bit concerned about that. Would welcome your opinions. Also, to Finita; keep pushing to have your test done, what I didn't know until I went through the process, is the BRCA1 and 2 mutations will show up as prostate cancer in men, and possibly other cancers as well. So it's not just breast cancer. It is good to have this forum to vent and seek advice, and I'm glad to see everyone is hanging in there. I turned 60 the other day, and someone made a comment to me that they thought it was odd I was so happy to reach that age; I said to them from where I stand, I'm EXTREMELY happy to reach that age :)
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