After Zoladex but still on tamoxifen?????
I'm curious to hear from any women who have been on the Zoladex/ tamoxifen combo and have completed the Zoladex and remained on tamoxifen. Did you notice any difference? Did you find the combo ok or struggle with side effects.
Myself: I have been on Zoladex and tamoxifen (2yrs+), with the original aim of 3yrs Z /5yrs T. For me it has been a hellish ride and I have no real way of knowing what I can attribute to each drug (or something else). I had horrendous nausea the first year: everyday at 3pm I'd be turning shades of green: no antinauseas worked. Ginger, icy waterand running over 10kms seemed to get it under control. In the second year, the fatigue grew to the point I can only go to work but have little life. I have worked through my dx though and at least some of this I think is not having had headspace to deal with it.
I'm keen to share my experiences because there are things that helped that may help others. I'm told my experiences and side effects are not common and I do not want to discourage other women looking at OFS/tamoxifen as I still think it was the right decision.
I've now been recommended to call an early halt the Zoladex but have menstrual like cramping 10-12 days out and so have not yet quit as relief from severe period pain was one up-side. I've also lost bone density with the combo, which is usual from my reading off the clinical studies. Recently I also started having hot episodes throughout the night but not had them until now. I find this curious as I did not have issues in the first 2 years (except the 3pm nausea/ shivering episodes).
Im interested to hear your experiences or share mine. :-)