Forum Discussion
TabooGal
8 years agoMember
Here Goes
Hello. My name is Jenny and I live on the NSW/Vic Border. I have gone to post in here a couple of times but backed out. Denial maybe?
On Wednesday I was officially given the diagnosis of BC. I have had a large lump for around a year but I have 26JJ sized breasts and the lump is down along where the bra wire sits. I put it down to thickening because of the bra wire. I recently started Lite N Easy and after loosing around 10kg I noticed that the lump was much larger than I thought. It has its own postcode ;p Its 5cm x 3cm x 2cm.
So I did the mammo and ultrasound and knew when I called for results, that the urgency by my GP to get me in to see her, that something was very wrong. That day I had bloods, CT scan and was booked in for biopsy. All along I was doing as much research as possible. Armed with knowledge I have always found it easier to deal with things. Must be part of the anxiety I have day in and out.
I met my surgeon on Wednesday who gave me the diagnosis. I was alone at the appointment and was in shock, none the less. I guess I was hoping it was just a mass that they just wanted to remove for safety sake. I do remember asking him what type of Cancer and I vaguely remember him saying Metastatic and that its very common. I am booked in for a lumpectomy and node removal on the 22nd. (Tuesday Week). I am then too do 5 weeks radiation.
I've got all of that in my head and ready to deal with. But now I am reading all of the paraphernalia and Metastatic means I have it in other places in my body? Do they know where? Does this mean I will probably have to do chemo after radiation?
I know I am overthinking all of this and should take it one day at a time. I work 3 days a week and also on partial DSP. Being at work keeps my mind off things. I am planning on taking vacation leave for the rest of the week after my lumpectomy. I am so grateful that my oldest of 2 (daughter) is able to travel up from Melbourne to bring me home from the surgery and stay with me for a couple of days.
Another questions. I had been using implannon rod to control my periods, over the years. The last one was put in around 2011 and is still in my arm somewhere. As I have very thick arms I cant feel it and haven't bothered about it. I believe that it has run out of the hormones anyway after all of this time. Is this something I should tell my surgeon about?
I have so many questions. When will I start radiation? Will someone contact me or do I contact them?
I met my Breast Care Nurse but she was heading on vacation to France the next day. I have the number of another one and I will phone her and make contact with her this week.
It's like my whole life is about the Cancer now. I am being strong in front of everyone else but these times at home alone I am terrified.
Sorry if this is all over the shop but that is how my head works. I have been treated and continue to be treated for Depression an Anxiety for close to 20 years and have only recently found a good balance. The Lite N Easy journey was me actually caring about myself. Some days I shake so much it looks like I am having a min seizure.
Usually I am upbeat and cheeky and able to find the lighter sign of things. But tonight I am low.
Any insights would be wonderful.
365 Replies
- kmakmMemberI'm keeping my short short hair for at least a year. Without exception everyone's told me how good it looks! I have nevet been one to fuss with my hair and so I'm loving how easy it is now. I've had hair down to my bum, short like a man and everything in between. I never would have had the guts to go this short, but have often wondered. I have a VERY short list of breast cancer silver linings (currently one). I think I'm putting my new 'do on it!
- TabooGalMember@Zoffiel. I cant believe how little shampoo I needed last night! I reckon I could cut down to once a week washes in this weather. Still getting used to it at the moment
- ZoffielMember
Hey Jen, you might be another one who finds the shorter style suits you in the future. It sure as shit is easier. Mxx
- EastmumMember@TabooGal - that looks so great!
I cut my hair about that short too - and I never shaved it shorter. I just let the rest of it fall out on its own, mainly in the shower (gross to collect the huge clump of hair from the drain each time before someone else used the bathroom!), and I've found (now that I've finished AC chemo) that I haven't actually lost all my hair. I don't have much, but it's a fairly even scattering all over my head and I still have sideburns and quite a bit at the nape of my neck. - Kiwi_AngelMember@TabooGal that looks really good - suits you!! xoxox
- kmakmMemberThat's a cute cut!
- TabooGalMember
- Kiwi_AngelMember
@Taboogal glad you are feeling better and getting your meds sorted. xo
- TabooGalMember@kitkatb Day 6 here. SE relatively mild to what I was expecting. Just enough to stop me from going to work. I struggle with the concept of delayed side effects. My mind says if it's going to happen it should happen straight away. Let my nausea meds get behind so had a rough night. Up until now it's been fatigue more than anything. Had my daughter come up from Melb for the weekend to be with me when I chopped my hair. Ended up going with pixie. Really struggling with cold head! Beanie in bed is norm at the moment. Am eating ok as long as I keep the nausea meds up. I feel you're anxiety. It's the unknown. I almost feel if I was able to be familiar with the chemo room and the process I would have been less stressed. Not so stressed about next one on 24th now. If you are doing chemo maybe you can ask to visit the chemo room so it's not quite so daunting? Big hugs to you. It's ok to be afraid. Xxx
- EastmumMemberHi @kitkatb - the first chemo is the scariest! I was also totally more freaked out about chemo than surgeries. Now it's just part of my world and I can definitely see the tiny pin prick of light at the end of the tunnel, knowing that each week it will get brighter and brighter until in just a few weeks' time it will all be behind me. You and @TabooGal will get through it too, and we're all here to help you!
Let us know what your oncologist says tomorrow! All the best for your appointment - don't forget to take a huge list of questions and don't leave until you have them all answered!
xxxxx