Forum Discussion
sue_lonie
13 years agoMember
Xeloda
Hi,
Today I started on Xeloda and am worried about side effects. Earlier this year I found I had more metastes in my hip and collar bone. The Oncologist put me on Everolimus and I was unable to tolerate it. I ended up in hospital for 10 days. I would love to hear from other people who are on Xeloda.
54 Replies
- TritonMember
Thanks Beth.
- TritonMember
A friend with 2ndary bc is on Xeloda and has had a really good response with CA15.3 dropping from elevated values to well below 30.
How long do people stay on Xeloda?
- TritonMember
Sorry - I thought you were quoting CA15.3
CA27-29 also measures the same protein and has similar normal range to CA15.3 (38 v/s 30). As usual, the upper limit of the range varies depending on the lab. One or the other tumor marker is ordered, typically not both. Although CA 27-29 may be more sensitive for breast cancer, its indications and limitations are similar toCA 15-3.
- TritonMember
Sorry - I thought you were quoting CA15.3
CA27-29 also measures the same protein and has similar normal range to CA15.3 (38 v/s 30). As usual, the upper limit of the range varies depending on the lab. One or the other tumor marker is ordered, typically not both. Although CA 27-29 may be more sensitive for breast cancer, its indications and limitations are similar toCA 15-3.
- beth1118Member
I dont know if I have ever had the CA 15.3 test done. I always have the CA27-29 test done. So I am not sure what my levels on the other tests are.
- beth1118Member
I take xeloda 1 week on and 1 week off. I started taking it this time in December 2013. My hands are red and peeling and my feet are red and hard and cracked and I occasionally I get blisters on my heels. My tumor marker numbers are still going down. Last couple times it was 21.3, 20.3 then 19.0. I feel great other than my feet and hand problems. I have a PET scan in a couple weeks, and hope to hear good news. My dr says the numbers can change from day to day a little bit. I had blood work once, and it was over 70 (not on the xeloda), then they re tested me a week later, and it was a little different. I think it was 72. I have been told uner 37 is good. Although, my dr said mine isnt reliable to say if I do or dont have cancer still. My friend who is cancer free now, for 7 years, just got tested, and her number is 16.8. I guess that is normal. Mine have been down to 16 at the lowest, and 105 at the highest, but not recently.
- beth1118Member
I take xeloda 1 week on and 1 week off. I started taking it this time in December 2013. My hands are red and peeling and my feet are red and hard and cracked and I occasionally I get blisters on my heels. My tumor marker numbers are still going down. Last couple times it was 21.3, 20.3 then 19.0. I feel great other than my feet and hand problems. I have a PET scan in a couple weeks, and hope to hear good news. My dr says the numbers can change from day to day a little bit. I had blood work once, and it was over 70 (not on the xeloda), then they re tested me a week later, and it was a little different. I think it was 72. I have been told uner 37 is good. Although, my dr said mine isnt reliable to say if I do or dont have cancer still. My friend who is cancer free now, for 7 years, just got tested, and her number is 16.8. I guess that is normal. Mine have been down to 16 at the lowest, and 105 at the highest, but not recently.
- TritonMember
- wendy_h67Member
thank you for your well wishes. Good news, I saw the oncologist today & my tumours are showing reduced activity in all areas.
my oncologist said that it was better than just being stable, which was what we were hoping for.
I will be staying on xeloda, & put up with the side effects as long as its working. Iam on a reduce dose now and so far no burning feet.
Thank you to all the pink sisters who wished me well.
- TraceyKMember
I've got everything crossed for you Wendy :) I'm having a bone scan late next week and am positive all will good. Take care.