Forum Discussion
sue_lonie
13 years agoMember
Xeloda
Hi,
Today I started on Xeloda and am worried about side effects. Earlier this year I found I had more metastes in my hip and collar bone. The Oncologist put me on Everolimus and I was unable to tolerate it. I ended up in hospital for 10 days. I would love to hear from other people who are on Xeloda.
54 Replies
- beth1118Member
I take xeloda 1 week on and 1 week off. I started taking it this time in December 2013. My hands are red and peeling and my feet are red and hard and cracked and I occasionally I get blisters on my heels. My tumor marker numbers are still going down. Last couple times it was 21.3, 20.3 then 19.0. I feel great other than my feet and hand problems. I have a PET scan in a couple weeks, and hope to hear good news. My dr says the numbers can change from day to day a little bit. I had blood work once, and it was over 70 (not on the xeloda), then they re tested me a week later, and it was a little different. I think it was 72. I have been told uner 37 is good. Although, my dr said mine isnt reliable to say if I do or dont have cancer still. My friend who is cancer free now, for 7 years, just got tested, and her number is 16.8. I guess that is normal. Mine have been down to 16 at the lowest, and 105 at the highest, but not recently.
- beth1118Member
I take xeloda 1 week on and 1 week off. I started taking it this time in December 2013. My hands are red and peeling and my feet are red and hard and cracked and I occasionally I get blisters on my heels. My tumor marker numbers are still going down. Last couple times it was 21.3, 20.3 then 19.0. I feel great other than my feet and hand problems. I have a PET scan in a couple weeks, and hope to hear good news. My dr says the numbers can change from day to day a little bit. I had blood work once, and it was over 70 (not on the xeloda), then they re tested me a week later, and it was a little different. I think it was 72. I have been told uner 37 is good. Although, my dr said mine isnt reliable to say if I do or dont have cancer still. My friend who is cancer free now, for 7 years, just got tested, and her number is 16.8. I guess that is normal. Mine have been down to 16 at the lowest, and 105 at the highest, but not recently.
- TritonMember
- wendy_h67Member
thank you for your well wishes. Good news, I saw the oncologist today & my tumours are showing reduced activity in all areas.
my oncologist said that it was better than just being stable, which was what we were hoping for.
I will be staying on xeloda, & put up with the side effects as long as its working. Iam on a reduce dose now and so far no burning feet.
Thank you to all the pink sisters who wished me well.
- TraceyKMember
I've got everything crossed for you Wendy :) I'm having a bone scan late next week and am positive all will good. Take care.
- julia_wMemberGood luck Wendy, I hope your scans are good
- wendy_h67Member
I have been on Xeloda since september last year.
I have trouble with burning feet, which have been very painful when walking.
Moo goo cream is soothing, also I've tried paw paw cream.
Last cycle was so bad by the 5th day, I had to stop for a week. My Oncologist has reduced the tablets to 4 a day and so far my feet have been fine this cycle.
Had a bone scan the other day, fingers crossed, when I see the oncologist this week it will be better news.
- beth1118Member
I told my dr about the nails splitting, and he told me to soak them in apple cider vinnegar. I have not tried that yet.
- AmyMember
My nails split from top up too. Any ideas what we can do to prevent that from happening?
- TraceyKMember
Julie,
Try places like the Body Shop or those shops that sell bath stuff (soaps, lotions etc). I have a spare pair I can send to you if you would like to email me your address - [email protected] :)