Xeloda

I took xeloda for 9 mts.  I had mets in my pelvis, ribs and liver.   The mets have shrunk in my pelvis and ribs and are completely GONE in my liver.  Dr took me off xeloda telling me it was to toxic to stay on.  I tried tamoxifen with no luck, femara with no luck then to faslodex shots with no luck.  Back on xeloda now after trying those other drugs and being off xeloda for almost a year.   Been on it for 4 rounds so far, 7 weeks.  after 5 weeks the tumor marker tests showed lower.  

Onc reduced my dosage from 6 tablets daily to 4. So far have had slight burning of feet but nowhere near as bad as previously. I also started using moogoo continually instead of waiting for symptoms. Maybe this helped?? Apart from ocassional tummy upsets (and chronic tiredness, though this is probably post op as well) all's good. Pain in ribs has gone too. Will be very interested in next scan results!

Adel, it is great to hear of your positive experience with xeloda. I had two rounds and was taken off because I needed an op for femur fracture and surgeon was worried it might compromise my recovery. It has been 5 weeks off it now and, while my hands have healed, my right foot is still losing the skin layer. I will be starting up again next week and am hoping to avoid the hand/foot syndrome this time round!! It will also be interesting to see what ground has been lost re attacking cancer cells.Oncologist assurred me he could 'make up lost ground' so here's hoping.

Thanks everyone for sharing your xeloda experiences. It's nice to know I'm not doing this alone. Take care all. Julie. xx

Hi, Sue,

I am also just starting Xeloda today.  So far so good, but early days yet.  I had a lot of problems with rashes and blisters with the Abraxane IV chemo that i was on previously.  It did settle down and I found the Moo Goo helped.  It was also good for my grand daughters exma.

Wendy 

Hi, Sue,

I am also just starting Xeloda today.  So far so good, but early days yet.  I had a lot of problems with rashes and blisters with the Abraxane IV chemo that i was on previously.  It did settle down and I found the Moo Goo helped.  It was also good for my grand daughters exma.

Wendy 

Hi Amy,

I had low white, red and platelet count and an ulcer on my tongue, which was disgusting, I couldn't put anything in my mouth without having something to numb the pain. The Onc. had lowered the dosage twice and I still had shocking side effects and my bony count went up, so it was no longer doing anything positive. It took 8 weeks for my blood count to come back to normal.

Thanks for all your replies. I have been on it for 8 days now and so far so good, except for diarhea. I had it from the Everolimus and was just getting over it and back it came. I am also seeing a gastroentorologist re diarhea and she has put me on Questran, which seems to be doing the trick.

Hi Sue

I haven't been on Xeloda (yet).  I think it is one of the next options the onc suggested if my current treatment doesn't work out.  I'm on Everolimus/Exemestane (excuse spelling) at the moment.  I've had bad ulcers but these have cleared up and also has attributed to lymphoedema in my right arms and swelling in my ankles.  What side effects did you experience?  Sorry to hear you ended up in hospital.  This is certainly a rollercoaster ride - a shame we can't opt to get off of it!

Good luck with Xeloda.  I hope you get good results for a long time.

Amy x

Hi Sue

I haven't been on Xeloda (yet).  I think it is one of the next options the onc suggested if my current treatment doesn't work out.  I'm on Everolimus/Exemestane (excuse spelling) at the moment.  I've had bad ulcers but these have cleared up and also has attributed to lymphoedema in my right arms and swelling in my ankles.  What side effects did you experience?  Sorry to hear you ended up in hospital.  This is certainly a rollercoaster ride - a shame we can't opt to get off of it!

Good luck with Xeloda.  I hope you get good results for a long time.

Amy x

I've just finished the tablets of 2nd cycle of Zeloda, having ct scan and seeing oncologist end of next week to see if effective.  I too got really sick a few months ago on Everolimus, had a week in hospital.  My feet seem to be fine but my hands are really dry and sensitive.