Thanks for getting back to us. I agree that there seems to be more than 3% of women under 40 living with ABC. I was diagnosed at 40 (43 now) with ABC from the start (like Mary-Lou does that mean my case was never even reported?).
I am 'lucky' because I have a wonderful breast care nurse who is there for us ladies with ABC. She is a great advocate for us. Why can't evey woman with ABC have access to such support?
While I understand the need to promote awareness about early breast cancer, people need to also be educated about secondary breast cancer and those that are living with this disease. More funding definitely needs to be allocated into research. Anything that BCNA can do to help us in getting the message out would be truly appreciated.
Please don't forget about us; while it may be 'cheaper' to let us die in monetary terms let's not forget the human side of our stories - our children, partners, parents, friends - who also find it difficult to get support while they go through this journey with us.
