Trodelvy - any info to share?
Hi, I am reaching out to see if anyone else has commenced Trodelvy chemotherapy and if yes, what are your side effects experiences. I am only in 1st cycle, 2 weeks on/1 week off. Main reaction has ...
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Hi All
I have had 5 doses ( 2 weeks on, one week off) of Trodelvy.
The side effects seem to keep changing for me. The fatigue is always there but over the last week I have also had dizziness and insomnia is an ongoing problem.
The week before that I suddenly got a rash over my lower legs and feet - very itchy - Initially I thought I had been attacked by mosquitos but the tiny red spots were very small and definitely a side effect. I have a constantly dry mouth and my hair fell out within two treatments.I never know how it will be so I try not to plan anything and have given up work because I feel wiped out most of the time.
I started Trodelvy after a year of trying three other types of chemo - none of which worked. I think it is a prerequisite to have tried other drugs before you can access It. My oncologist calls it a 'game changer' for triple negative met patients.
I had to pay for the first two doses and then the drug company decided they would pay the rest. A huge relief as it is very expensive.
I try to stay positive though it's hard when you feel so wrecked. I have scans in a few weeks which will determine my fate.
Thankyou very much to Arpie for posting that excellent article from the Sunday telegraph which gives me hope.
Best wishes to you all
I have had 5 doses ( 2 weeks on, one week off) of Trodelvy.
The side effects seem to keep changing for me. The fatigue is always there but over the last week I have also had dizziness and insomnia is an ongoing problem.
The week before that I suddenly got a rash over my lower legs and feet - very itchy - Initially I thought I had been attacked by mosquitos but the tiny red spots were very small and definitely a side effect. I have a constantly dry mouth and my hair fell out within two treatments.I never know how it will be so I try not to plan anything and have given up work because I feel wiped out most of the time.
I started Trodelvy after a year of trying three other types of chemo - none of which worked. I think it is a prerequisite to have tried other drugs before you can access It. My oncologist calls it a 'game changer' for triple negative met patients.
I had to pay for the first two doses and then the drug company decided they would pay the rest. A huge relief as it is very expensive.
I try to stay positive though it's hard when you feel so wrecked. I have scans in a few weeks which will determine my fate.
Thankyou very much to Arpie for posting that excellent article from the Sunday telegraph which gives me hope.
Best wishes to you all