Hi everyone, had a Petscan on Saturday results today, spread to my stomach lining and adrenal gland now very small but there, has anyone else been in this position? If so how was it treated? I have to have a biopsie done to confirm same cancer then possible infused chemo again,

Hi @Glynnis, I think it's normal to be frightened. I would be. Shame you can't see your oncologist sooner. You could ask to get in earlier if a cancellation. Medicine is so amazing now and treatment is so much better. Wish I could give u a really big hug xx

All the best for the chemo @Glynnis .... keep your fluids up and I hopefully the side effects won't be too bad. Eat well, sleep when you feel like you need it ... and take care xx

Thanks for the update @Glynnis. I hope you get a good result from chemo and your side effects aren't too bad. Let us know how you are going with it.

Hello @Glynnis I hope you are coping OK. I was recently diagnosed with BC Mets to stomach lining. LobularER+Her2-. Previously, 2016 early stage lobular BC.I have been on Abemocyclicic and Fulvestrant for 2 months now and the hope is to shrink it. Hopefully more scans in a month.It is a big shock and it seems quite rare to spread to stomach. The new reality is hard but this forum really helps, as does my lovely Oncologist and treating team. Hope you have the same!🌸

Take care @Fifilamour and @Glynnis - I hope you both go well with your treatment xx

Spread to tummy lining and adrenal gland

19 Replies

Glynnis
Member
2 years ago
Hi @Fifilamour sorry just saw your message, how are you going?? I hope all is good for you?
I’m going ok had 6 cycles of chemo and markers have come way down and seem steady. Had a Petscan which picked up new spread to my humorous. Oncologist say chemo should sort it and will rescan in January. Yes I get some digestive problems as in heart burn I have tablets which I take for it when I get it and sorts it pretty well otherwise I’m doing ok on chemo,
Anonymous
2 years ago
@Glynnis - It seems we have 2 channels going talking about lobular MBC and spread to stomach. Shall we consolidate to one? Fifilamour is on the other one (I think she posted twice). Its' Lobular Breast Cancer under MBC. Maybe see if you can find it. I have posted a recent update there.
I'm not going so well - had a challenging 2 weeks with disease progression. Just got out of hospital last week and also started Epirubicin chemo weekly (last week). Now the waiting game .. . ..
Glynnis
Member
2 years ago
Hi @Fifilamour sorry just saw your message, how are you going?? I hope all is good for you
I’m going ok had 6 cycles of chemo and markers have come way down and seem steady. Had a Petscan which picked up new spread to my humorous. Oncologist say chemo should sort it and will rescan in January. Yes I get some digestive problems as in heart burn I have tablets which I take for it when I get it and sorts it pretty well otherwise I’m doing ok on chemo,
Glynnis
Member
2 years ago
Hi @jgameau, sorry just saw this. How’s things going with you now? I hope the chemo is going well?

I had 5 months chemo just had a Petscan and a new spread was found in my humouros oncologist says chemo should sort it 🤞🤞fingers crossed it does having another Petscan in January.
Anonymous
2 years ago
Hi @Glynnis and @Fifilamour. Sorry I am late to this convo. I have lobular MBC. Mets in bones back in 2021 and late 2022, it spread to my stomach lining, and I have 1 impacted lymph node. I'm triple negative. I did 7 months of chemo this year - Trodelvy (because I'm TNBC) which worked on my bone Mets. But I needed to swap to Gemcetabine CarboPlatin to deal with stomach Mets, which I completed 5 cycles. It did seem to work, tumours markers came down 50%, CT and pet scans reported the disease as stable. That was late Aug.
Then 1 month later, the stomach pains start again and I ended up in ED over the weekend. (It was my 3rd time in hospital in 6 months related to my GI tract shutting down!). CT scans and gastroscopy show the disease is still active in my stomach wall and the peritoneum. My markers have doubled! I go on chemo again next week, just not sure which one.
So, yes Lobular MBC is tricky. Stomach Mets is becoming more common with lobular. Main positive is that it tends to be slow growing, although mine seems a bit more on the fast growing side. Stomach pains and trouble eating are a regular side effect. I have a good dietician. I take Omeprazole 40mg to reduce the acid produced by my stomach, and have altered my diet permanently to low soluble fibre (eg lots of soft food). I don't know if this will fix the stomach flare ups.
I send my love to you both. Good luck with your next scan results. And I will keep you posted with my treatment. I wish we all had a magic solution. The chemo treadmill just gets tiring after a while. This will be my 6th line!! 😥
Fifilamour
Member
2 years ago
@Glynnis just wondering how you are going?
I am hoping to have pet scan in next couple of weeks as it’s been almost 3 months on abemocyclicib and Fulvestrant injections.
Do you have digestion issues? If you do, how do you manage them?
Hope all is good for you!
@@Fifilamour xxx
arpie
Member
2 years ago
That's terrific news @Glynnis - all the best for your Onc visit on Fri & the scans!
Glynnis
Member
2 years ago
Hi all just quick update, I had 5 chemo cycles now and I’m doing really well on it, tumor markers have come down considerably. Seeing oncologist on Friday and think she will be sending me for more scans to see exactly how we are going.hope everyone is well 😃
jennyss
Member
2 years ago
Dear @Glynnis and @Fifilamour,

from jennyss in Western NSW
arpie
Member
2 years ago
Take care @Fifilamour and @Glynnis - I hope you both go well with your treatment xx