Forum Discussion
Secondary breast cancer
Hi this is my first blog,
I have been living with mestatic breast cancer for 4 months now, well that is when I found out that the cancer had spread to my skull, spine, pelvis, ribs, throat, chest wall and 2 weeks ago I was told that it is now in both my lungs.
I am still working full time, now that the pain has been managed, it's amazing the treatments they have out now, I thought I was going to be bed ridden with the pain.
Though I think the best medicine is having a positive mind, faith and HOPE. I know there is no cure for my cancer now, but there is always HOPE as new treatments are coming out that will prolong my life. I could still be around for many more years to come, well I am going to be around for many more years to come, that's better thinking.
I praise the Lord for helping me with his courage, spirit and wisdom.
64 Replies
- I would be interested in hearing what you have to say ness. Where are your mets? How long ago were you diagnosed?
I've been dealing with my cancer with alternative treatments and seem to be winning the battle. If anyone is looking for alternatives for treatment when their doctors tell them there is not much they can do for their stage of cancer let me know and I can give you some other information about plants and herbs etc that are working for me. I'm sure nature provided a cure for everything and I've done a lot of research to find a cure for myself so I'm happy to share that. Even if you combine it with whatever 'modern medicine' has been recommended it might just give you better odds.
Kind regards, Ness
- Hi ladies, did you know that NO statistics are collected about secondary breast cancer (also known as advanced breast cancer or metastatic breast cancer in Australia!
No-one knows how many women are diagnosed with this disease in Australia, how many are living with it, what the ages/geographical location/cultural background etc of are of these women, what care they are receiving and the care outcomes.
Research funding levels are usually based on data, which explains why approximately only 3-4% of breast cancer research funds are directed towards secondary breast cancer. Appalling stuff!
In the spirit of "rattling some cages" to raise the profile of this issue, I've had a go at drafting a letter to local MP's and any other people/organisations who could do with a poke and prod to get some action happening! I thought maybe those who are interested could send the letter off to their MP's and see what sort of a response we get!
If you would like to help me rattle some cages, please feel free to send a private message through and I will send you a copy of the letter. Celeste ? Hi Cellbird, I was meant to read your post today, sorry I know that you wrote it last month, though I just couldnt keep up with the overwhelming support as there was so many relpies. This morning I have had brain and lung scans, as both lungs have multiple leasions and when I read your post it gave me so much hope, as I am anxiously awaiting the results and what might happen to my treatment plan. Thank you for your post, it is very encouraging.
Looking forward to a message on when you might be in Melbourne! Also thanks, things turned out great with the help i had before Melbourne Cup Day, getting an early appointment for the day after the public hol. really helped. Hope things are going alright for you in the early months since learning your news of secondaries. Hugs, Jenny
- Hi Jenny, I definitely will let you know in advance. Hope all is well on your side xx
Hi max1ebob,
I'm a late jumper-in-era onto the end of your post but I hope you have managed to connect up with some of these amazing women who know exactly what you are going through.
I am not sure if you have come across the online group 'Women living with advanced breast cancer' as yet? But there are close to 200 members living with secondary breast cancer which you can also connect in with. If you think it would help - join the group and make an introductory post - http://www.bcna.org.au/group/4218
If you need a hand finding your way around just shout ~Daina
Hi max1ebob,
I'm a late jumper-in-era onto the end of your post but I hope you have managed to connect up with some of these amazing women who know exactly what you are going through.
I am not sure if you have come across the online group 'Women living with advanced breast cancer' as yet? But there are close to 200 members living with secondary breast cancer which you can also connect in with. If you think it would help - join the group and make an introductory post - http://www.bcna.org.au/group/4218
If you need a hand finding your way around just shout ~Daina
Hi Desi, sounds good for a Melbourne visit! Maybe a week or two's notice cos I don't check online every day....Good places for meeting (both easy to get to if public transport) are Think Pink (The Living Centre) as chrismelb has outlined above and BreaCan which is right in the city (both centres are on BCNA Online Network)........Hi there max1ebob, this has gone heaps further over the week since you first posted. Really hoping the week's gone alright for you...it's great news you've had specific medical info and some good pain management.....As for positive thinking, I've gone a bit wobbly myself this week (a bit of overload combined with a couple of routine tests)...so I'll logout and get on the phone to one of the hospital's breast care nurses and see if she can find out the timing for test results, so I'm not sweating it out over the weekend!!! Jenny xx :)
- Thanks for letting everyone know about the new support group Francesca. Next meeting is Wednesday 20th November at 10.30-12. You can park in a car park around the corner for $6 which basically is the same price as parking on street. Or it is right on the tram line directly from Flinders Street. It is a nice comfy place to meet where we are free to talk without others overhearing our often frank conversations. Come along and feel supported.
