Forum Discussion
max1ebob
12 years agoMember
Secondary breast cancer
Hi this is my first blog,
I have been living with mestatic breast cancer for 4 months now, well that is when I found out that the cancer had spread to my skull, spine, pelvis, ribs, throat, chest wall and 2 weeks ago I was told that it is now in both my lungs.
I am still working full time, now that the pain has been managed, it's amazing the treatments they have out now, I thought I was going to be bed ridden with the pain.
Though I think the best medicine is having a positive mind, faith and HOPE. I know there is no cure for my cancer now, but there is always HOPE as new treatments are coming out that will prolong my life. I could still be around for many more years to come, well I am going to be around for many more years to come, that's better thinking.
I praise the Lord for helping me with his courage, spirit and wisdom.
64 Replies
- max1ebobMember
It must be so hard for you having young children, I have a 20 year old daughter who is finding it hard to deal with, let alone younger children who really might not have learnt coping skills or can fully comprehend what is really going on, except for your 14 year old. I am thinking of you
- ClaireabelleMemberCatcrazy I'm 35. I've only recently joined this group. I really liked what you had to say too. It is the best thing to hear of people with hope. We too are still trying to come to terms with the idea of it being incurable but swing between putting it "aside" and ignoring it and then floundering. Hearing peoples positive stories is so strengthening and whilst I know we can't compare and know everyone is in a different position fit doesn't hurt to hope xxxx
- Pink66Member
Totally loving your outlook especially when you are only 4 months in. I too am sorry to have to meet here in this group. Pain free is a very good way to be whilst living with this disease. I had EBC in 2004 (38) and now ABC since 2012 (46 and I work on minimising it every single day. I am so very glad that your onc has a good outlook and it is a way better and yes, there are many things they can try to stabilize us.. and I wish you the best outcome xxx. It is certainly a new kind of normal..
Sharon - Pink66Member
Totally loving your outlook especially when you are only 4 months in. I too am sorry to have to meet here in this group. Pain free is a very good way to be whilst living with this disease. I had EBC in 2004 (38) and now ABC since 2012 (46 and I work on minimising it every single day. I am so very glad that your onc has a good outlook and it is a way better and yes, there are many things they can try to stabilize us.. and I wish you the best outcome xxx. It is certainly a new kind of normal..
Sharon - LLSMemberI think I echo Gaylene's thoughts in welcoming you to this group while acknowledging that it is one to which we all wish we didn't belong. Nevertheless welcome and I hope that the group helps with support, information and a place to chat with others with similar experiences. I was diagnosed 5 years and don't often talk about it. I had been working part time up until July when I fell and broke the neck of femur. Fortunately this was not the mets deciding to become active again, just clumsiness combined with a slate floor and a bit of bad luck. Well done on being at work full time and I am pleased to hear the pain is under control. Be kind to yourself and maintain your hope.
- Deb_FMemberYou give me hope that I can actually do this, thank you. Xxoo
- GayleneMemberWelcome to the group. Although its a group we all wish didn't need to exist. Yes positive attitude goes a long way. Glad to hear that things are stabilizing for you, and the pain is under control. I have been living with Mets for two years and try to not think about it too much. Though I was recently diagnosed with brain mets as well so life has been a bit hectic for the last month or so. But now at the typical wait and see stage. Which is when life goes back to our new normal. Yes it's not curable but many people live with life threatening diseases for many years, we will be no different. And it's amazing what new treatments are found every day. Glad to have met you.
- GayleneMemberWelcome to the group. Although its a group we all wish didn't need to exist. Yes positive attitude goes a long way. Glad to hear that things are stabilizing for you, and the pain is under control. I have been living with Mets for two years and try to not think about it too much. Though I was recently diagnosed with brain mets as well so life has been a bit hectic for the last month or so. But now at the typical wait and see stage. Which is when life goes back to our new normal. Yes it's not curable but many people live with life threatening diseases for many years, we will be no different. And it's amazing what new treatments are found every day. Glad to have met you.
- Cat18MemberI'm coping, thankfully I have dark moments now not dark days, and I think my brain has gone into protective mode and doesn't let me dwell too much on it but I also have 2 boys 7 & 14 who need a functioning mum, I refuse to give in to this disease but also my initial early bc diagnosis was nearly 3 years ago so I guess I had some processing time previously, I also regularly talked to a counsellor at the cancer council when I was first diagnosed who helped me learn some coping mechanisms
- Cat18MemberI'm coping, thankfully I have dark moments now not dark days, and I think my brain has gone into protective mode and doesn't let me dwell too much on it but I also have 2 boys 7 & 14 who need a functioning mum, I refuse to give in to this disease but also my initial early bc diagnosis was nearly 3 years ago so I guess I had some processing time previously, I also regularly talked to a counsellor at the cancer council when I was first diagnosed who helped me learn some coping mechanisms