Hi Tilly
I can't imagine how you're feeling now...suddenly my secondary in my lower back is indignificant! I am very lucky it hasnt changed or spread for 4 years.
My father was diagnosed with multiple myeloma in 2007, & only lived till 2009. Till he was diagnosed, he was so well. It was devasting for all of us. He went with my younger sister to the top of Western Australia: a dream and bucket list he'd always had. His oncologist sorted his meds, & even though he wasn't the best...in a wheelchair (hard for my sis who's built like a stick!), but they had a ball, & the last few months were very peaceful and restful for him.
Having said all this, I reckon you have much more time, & should do just exactly what you want, within the alliwances of your treatment. I find the breast care nurses who work with the oncologists have really valuable strategies for coping emotionally as well. Its great you are surrounded by wonderful family & friends. You are incredibly positive, strong and brave. Make some affirmation cards with phrases like that on them (they're fun to make & you csn forget your worries by being creative); & keep little piles of them in your handbags, round the house & next to your bed. My friend made me a little box of them.
Love and hugs to you
Kathleen xxxxxxxooooooo