Forum Discussion
Cath62
11 months agoMember
@arpie, @Locksley and @Julez1958 seems several of us would like to be recognised if we pass from this disease and me included.
This organisation only exists because of our disease and we should be able to have a dragonfly if we one. @Mez_BCNA this really should be put forward again. Things change and ad someone with mets, I feel very strongly about this.
This feedback from us here needs to included in the current survey and escalated. Please also escalate my previous feedback about listing members of the mets group by active first instead of by joining group date.
This organisation only exists because of our disease and we should be able to have a dragonfly if we one. @Mez_BCNA this really should be put forward again. Things change and ad someone with mets, I feel very strongly about this.
This feedback from us here needs to included in the current survey and escalated. Please also escalate my previous feedback about listing members of the mets group by active first instead of by joining group date.