Forum Discussion
Not_good_63_57
5 years agoMember
Newly diagnosed
So very scared advice greatly appreciated
I had mammogram as have inverted nipple yes cancer so went through testing good news is not in lymph nodes so had ct scan for other body parts good news no cancer in them but had to have another scan with dye only to find out it’s extensive in spine so very scared bout dying my brain is in overtime stress levels are beyond belief and have no idea wats goin to happen but it’s not in other bones
I had mammogram as have inverted nipple yes cancer so went through testing good news is not in lymph nodes so had ct scan for other body parts good news no cancer in them but had to have another scan with dye only to find out it’s extensive in spine so very scared bout dying my brain is in overtime stress levels are beyond belief and have no idea wats goin to happen but it’s not in other bones
14 Replies
- Thankyou so much
yes this site and ladies have helped me so much and I appreciate every comment
I have calmed little bit but suffer panic and anxiety so I’m trying
once I start treatment think I will b better as then I will know wat to expect
but Thankyou xo - JoinmelbMemberNot_good_63_57 I replied to your inbox message too and have just seen you post in here. This group and the ladies on here is exactly the medicine that you need. Mine is breast cancer that has metastatised to the bones only, no other organs at all that I know of. I'm coming up to my 2 year anniversary since diagnosis and am living well. I'm glad you have seen a pysch and fingers crossed your GP is amazing too. Another tip that I have is that if at any time you feel that you aren't being heard, don't be afraid to ask AGAIN and AGAIN no matter how you feel you might be perceived. ANd if you feel that you aren't being heard at all, don't be afraid to change drs. Take care and feel free to ask any questions xoxoxo
- So seen psychologist her answer to bein negative is to b positive with others that have gone through same have made it and others that have it worse made it and she is so right with that statement
she told me I will b ok and I will come out other side
that has picked my spirit up bit
so no more negative - Giovanna_BCNAMemberNo problem @arpie will do giovanna
- arpieMemberThats a bugger of a diagnosis and I think we all would react the same. Xx. Good that your daughter supports you at the appts.
I am glad you are seeing a psych to help you cope. It really does muck with your brain. :(
Being ‘older’ sometimes means it is slower growing and becomes more of a ‘chronic treatable condition’ .... I have a few personal friends in the same boat and they are going ‘ok’. Some have had surgery and meds. Some just on meds.
Try and get out and enjoy the beauty of the outdoors ... anything to give you a lift xxx
take care and all the best xxx
@Giovanna_BCNA, @Riki_BCNA ... can you help @Not_good_63_57 to join the Mets group please? - Hey I tried that clicked join but still cannot acces it now when I click on groups and go to that one there is no join to click on I don’t know wat I did wrong
- KattykitMember@Not_good_63_57, in the drop down box at the top, click on groups and hit the join button for the Living with metastatic breast cancer group. I'm sorry you've found yourself here but as brightside says there are lots of uplifting stories here and some of us have been around for quite a long time. Just breathe, you are among friends here.
- Hi
how do u join I’ve tried got nowhere - brightspaceMemberHi my dear... big breaths
please join the metastaic group here
Lots of postive stories and long duration
Yes it does do your head in at the beginning but life does improve
All the best
Bright in hope - Thankyou all
yeh went back to docs took my daughter I was so distressed bout it broke down crying as got it in my head not good outcome ... doc said it’s breast mastatic think that’s right so not classed bone cancer but in bone in neck shoulders spine hip/pelvis so that really upset me ... so now on Valium and off to psycholist tomorrow still waiting to get into P.A as soon as I can she marked it urgent ...I really hope there is treatment and hasn’t gone too far but it’s not in nodes or any organs doc said it’s weird lol
Does anyone have bone mastatic