Forum Discussion
new bone lesions....help whats next for me
Hi all,
I thought I was off this merry go round that is cancer. I've just been diagnosed with METS on 2 ribs(one each side), humeral head, scapula and a also in pelvic bone. I originally thought it was only in the 2 ribs which were discovered via a bone scan and then a follow up MRI. I elected to pay the exhorbitant fee for the PET scan and my breast surgeon has just called tonight to tell me it's in the places other than ribs. He has said they are only tiny spots.
At my oncologist appt the week before xmas (when all i had was the 2 rib mets) the game plan was shit hot drugs as she called them - letrozole and ribociclib, then a massive single dose of radiation to the ribs.
Now, I'm not sure what next step will be seeing as though its in different spots. She did tell me at my last appt not to google but to come in here so here I am.
Sorry, this is really rambling.
I am absolutely shit scared, I have 2 kids who are young teenagers and have recently divorced my partner, long story but he couldn't cope with my ongoing medical issues as cancer was 95% caused by me according to him and I couldn't live with the ongoing guilt. Now I'm in limbo land with everything.
<My oncologist is away until mid Jan when I have my next review.
Hoping for any words of wisdom, the letrozole is absolutely killing my joints in my feet particularly and I haven't even started the ribociclib and won't until the review with her.
Thanks in advance xoxox
I thought I was off this merry go round that is cancer. I've just been diagnosed with METS on 2 ribs(one each side), humeral head, scapula and a also in pelvic bone. I originally thought it was only in the 2 ribs which were discovered via a bone scan and then a follow up MRI. I elected to pay the exhorbitant fee for the PET scan and my breast surgeon has just called tonight to tell me it's in the places other than ribs. He has said they are only tiny spots.
At my oncologist appt the week before xmas (when all i had was the 2 rib mets) the game plan was shit hot drugs as she called them - letrozole and ribociclib, then a massive single dose of radiation to the ribs.
Now, I'm not sure what next step will be seeing as though its in different spots. She did tell me at my last appt not to google but to come in here so here I am.
Sorry, this is really rambling.
I am absolutely shit scared, I have 2 kids who are young teenagers and have recently divorced my partner, long story but he couldn't cope with my ongoing medical issues as cancer was 95% caused by me according to him and I couldn't live with the ongoing guilt. Now I'm in limbo land with everything.
<My oncologist is away until mid Jan when I have my next review.
Hoping for any words of wisdom, the letrozole is absolutely killing my joints in my feet particularly and I haven't even started the ribociclib and won't until the review with her.
Thanks in advance xoxox
22 Replies
Hi joinmelb, sorry you are back again like kmakm I have no answers but some suggestions.....
here is the link to join the living with mets group.... http://onlinenetwork.bcna.org.au/group/2-living-with-metastatic-breast-cancer
Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and how to order a MY journey Kit if you haven't got one yet.
It can be a whirlwind when we first get a diagnosed.... Breathe and take it one step at a time.
How to post on the main forum – use this link to get to the main forum and begin a new post. https://onlinenetwork.bcna.org.au/post/discussion
Navigating the online community formerly the what and how thread.
Breast Care Nurses
https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx
My Journey online tool and other resources.
My Journey Online Tool resources
https://myjourney.org.au/hp/step5https://www.bcna.org.au/resources/
BCNA Helpline 1800 500 258
If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9am-6pm Monday to Thursday and 9am to 5pm Fridays.
How to understand your pathology reports
- I am so sorry @Joinmelb. This is an absolute prick of a disease. I'm not in any position to contribute, other than to say I'm thinking of you, and I hope you have good support around you at this time. I'm glad your onc sent you here. I hope you find it helpful and supportive. The BCNA helpline reopens on Monday. Perhaps give them a call. 1800 500 258. Biggest of hugs, K xox
