NEARLY THAT TIME AGAIN!!

@lesleyb - sounds like your Onc is listening to you and of course checking the scans.  :) Wishing you well, take care

My tumour markers don't work unfortunately.  Onc relies on how I am feeling and scans.

@lesleyb Xgeva is supposed to cause bone pain so it may well we that. Having said that I am currently on Xeloda, end of week one of 2nd cycle & so far - touch wood - have suffered no side effects to speak of. I have great QOL, I work full time & run 5km @ parkrun each week & even through some actual running events into the mix, especially if there is a medal to be had...

Good luck with your scan results.. Does your Onc test tumor markers?

Hi everyone.  So sorry to hear you all have so much scanxiety.  Goes with the territory doesn't it.  I am 2 and a half years out from dx of Stage 1V and have only had AI's and Xgeva so far even though I have had small progressions here and there.  The Xgeva is doing its job of replacing some old bone with good healthy bone.  My onc wants me to stay off chemo for as long as possible so that I can have good QOL.  However, after scans this week I am thinking it will be my time to start Xeloda when I see my onc on Monday.  Body pain is getting worse but it could just be the Aromasin that is causing it.  

Oh well, whatever will be will be.  Ce'st las vie

@Klea WOOHOO!!!!! That is AWESOME!!!! I think youre doing everything right! and yeah Cancer Drugs uuugh! as I said I have Osteoporosis in my neck and lower back..apparently LOL. I shouldnt laugh but OMG really? all from Chemo..so yes Vit D and C for absorption, and magnesium I take. I also have 2 Prolia injections a year! Im recovering from a Mastectomy/Diep flap recon at the moment so Ive forgotten about my bones for now LOL. Hope youre on the mend! Hugs xo Melinda 

Well Mel its good news the fracture was due to the fall YIPEE!!!!!!!. No cancer progression and all still stable a big relief !!!!!!!!!!!!!!!!. However I do seem to have signs of oesteoporosis which is a worry. I am on xygeva , calcium vit D and do weight bearing excersize. Not sure what I can do about it. I suppose its the price we pay on these cancer drugs ?

Will do Mel I suppose we only realize we have a problem with our bones when they break. I feel fine too I was extremely surprised at results thought I would sail in have a quick chat get told all stage see you next time. So know I get a double dose of scaniexty

Klea stupid thing is I felt absolutely fine, I sometimes wonder if they got it wrong with the Osteoporisis, admittedly I have pain constantly in my neck and lower back but I never worried of breakage. Uuugh let us know how it goes xo

Thanks Mel I am really hoping so. That dam hammock fingers crossed. Bit worried though as xgeva shots supposed to strengthen bones . Oh well have to do more modelling assignments         ( scans) to see. Thanks for the support.

Klea Damn! could be from the fall. About 5 months after Chemo my Oncologist decided to do a bone density, I felt fine! Ummm came back with Osteoporosis in my neck and lower back. I am now on Prolia injections twice a year, and am slowly heading into muscle work which really helps. You're quite active so hoping scans come back aok!! xo Melinda