","board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"conversation":{"__ref":"Conversation:conversation:43725"},"author":{"__typename":"User","login":"Beryl_C_"},"postTime":"2019-02-04T21:29:48.000-08:00","kudosSumWeight":3}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8b3w1fDE0OjAsMzk6MXw0","node":{"__typename":"ForumReplyMessage","uid":43734,"body":"All the best for your scan results @Mazzi - the bloody wait time is still the pits. Try & keep doing stuff that you really enjoy - uplifting stuff ...... if you want a few laughs - go onto Friday Funnies, or Naughty but funny ,,, hopefully some of the cartoons will get you laughing out loud!
You are not alone - Take care, big hugs coming your way xxxx
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The information available on the Breast Cancer Network Australia website is not medical advice and is provided for information purposes only. It should not be viewed as a replacement for a consultation with a qualified medical professional. Our website is designed to offer information and support to the general public. Be aware that we do not provide any medical advice, and for medical advice we recommend you speak to a qualified medical professional or doctor.
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term herceptin for bc mets....","id":"message:43725","revisionNum":1,"repliesCount":39,"author":{"__ref":"User:user:3148"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"conversation":{"__ref":"Conversation:conversation:43725"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:43725"},"body":"Found an old discussion from Kari_2015. Just wanted to let ladies know that I have been on Herceptin for 13yrs. Managing to keep lesions only in bone so pretty happy with that... Only know one other lady that is on herceptin still...been 11-12yrs for her too. My understanding is that if you are going to have problems cardiac wise it is more likely to happen in the early stages. I have reg echo's done. Get pissed off with having treatment at times but very thankful for this drug... would love to hear from others that are on herceptin long term.. cheers :)","body@stringLength":"579","rawBody":"Found an old discussion from Kari_2015. Just wanted to let ladies know that I have been on Herceptin for 13yrs. Managing to keep lesions only in bone so pretty happy with that... Only know one other lady that is on herceptin still...been 11-12yrs for her too. My understanding is that if you are going to have problems cardiac wise it is more likely to happen in the early stages. I have reg echo's done. Get pissed off with having treatment at times but very thankful for this drug... would love to hear from others that are on herceptin long term.. cheers :)","kudosSumWeight":3,"postTime":"2019-01-28T05:46:34.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:bone-metastasis","text":"bone-metastasis","time":"2025-03-25T05:02:21.623-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:herceptin","text":"herceptin","time":"2025-03-25T05:02:01.961-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43725_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":2383},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"searchSnippet":"Found an old discussion from Kari_2015. Just wanted to let ladies know that I have been on Herceptin for 13yrs. Managing to keep lesions only in bone so pretty happy with that... Only know one ...","replies":{"__typename":"MessageConnection","edges":[{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc2NA","node":{"__ref":"ForumReplyMessage:message:43764"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc2Mw","node":{"__ref":"ForumReplyMessage:message:43763"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc2Mg","node":{"__ref":"ForumReplyMessage:message:43762"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc2MQ","node":{"__ref":"ForumReplyMessage:message:43761"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc2MA","node":{"__ref":"ForumReplyMessage:message:43760"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1OQ","node":{"__ref":"ForumReplyMessage:message:43759"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1OA","node":{"__ref":"ForumReplyMessage:message:43758"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1Nw","node":{"__ref":"ForumReplyMessage:message:43757"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1Ng","node":{"__ref":"ForumReplyMessage:message:43756"}},{"__typename":"MessageEdge","cursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1NQ","node":{"__ref":"ForumReplyMessage:message:43755"}}],"pageInfo":{"__typename":"PageInfo","hasNextPage":true,"endCursor":"MjUuMnwyLjF8aXwxMHwzOTowfGludCw0Mzc2NCw0Mzc1NQ","hasPreviousPage":false,"startCursor":null}},"customFields":[]},"Conversation:conversation:43725":{"__typename":"Conversation","id":"conversation:43725","solved":false,"topic":{"__ref":"ForumTopicMessage:message:43725"},"lastPostingActivityTime":"2020-04-01T03:01:44.000-07:00","lastPostTime":"2020-04-01T03:01:44.000-07:00","unreadReplyCount":39,"isSubscribed":false},"ModerationData:moderation_data:43725":{"__typename":"ModerationData","id":"moderation_data:43725","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:43725_1":{"__typename":"Revision","id":"revision:43725_1","lastEditTime":"2019-01-28T05:46:34.000-08:00"},"CachedAsset:theme:customTheme1-1743643614981":{"__typename":"CachedAsset","id":"theme:customTheme1-1743643614981","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43764"},"body":"Dear @Mazzi, @wendy55 & @KeelyB Thanks so much for sharing how long you have been on herceptin. 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I started Herceptin and Perjeta in September and its so good to hear your stories. 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In spite of side effects (neuropathy and overall fatigue) I continue - I call it my 'insurance'. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"175","kudosSumWeight":1,"repliesCount":0,"postTime":"2020-03-13T18:55:40.000-07:00","lastPublishTime":"2020-03-13T18:55:40.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43762","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"179","rawBody":"Hi Vicky, scroll back to my previous post. 8yrs for me and today is no. 120. In spite of side effects (neuropathy and overall fatigue) I continue - I call it my 'insurance'. ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43762_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20700":{"__typename":"User","id":"user:20700","uid":20700,"login":"kmakm","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-02-09T07:37:32.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/723/pT0EUNG97M543.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20700"},"ModerationData:moderation_data:43761":{"__typename":"ModerationData","id":"moderation_data:43761","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43761":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20700"},"id":"message:43761","revisionNum":1,"uid":43761,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43761"},"body":"Bloody fantastic Vicki! I would have made the same decision. If it ain't broke, don't fix it! K xox","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"99","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-03-13T15:19:13.000-07:00","lastPublishTime":"2020-03-13T15:19:13.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43761","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"99","rawBody":"Bloody fantastic Vicki! I would have made the same decision. If it ain't broke, don't fix it! K xox","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43761_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:10017":{"__typename":"User","id":"user:10017","uid":10017,"login":"Vicki_White","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2012-11-19T05:57:20.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatars/p860d66e05598a62c4dcbcf6127162538.jpg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:10017"},"ModerationData:moderation_data:43760":{"__typename":"ModerationData","id":"moderation_data:43760","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43760":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:10017"},"id":"message:43760","revisionNum":1,"uid":43760,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43760"},"body":"Hi all, I have been on 3 weekly Herceptin for 8 years now, first 7 intravenously with side effects and the last 1 a sub-cut in the leg with no side effects other than a bruised leg . I have regular echo's which are good and I'm scanned every 6 months. I am very fortunate to say it hasn't spread anywhere else. Last week my Oncologist told me that I could stop it if I wanted but not sure what the future holds due to a lack of evidence and studies on Herceptin !. My husband and I talked at length about the pros and cons and decided not to stop. It is a very strange situation to be in considering I never thought id make it to 3 years let alone 8 !!!. Is there anyone out there in the same boat as I am????","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-03-13T07:57:43.000-07:00","lastPublishTime":"2020-03-13T07:57:43.000-07:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43760","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"722","rawBody":"Hi all, I have been on 3 weekly Herceptin for 8 years now, first 7 intravenously with side effects and the last 1 a sub-cut in the leg with no side effects other than a bruised leg . I have regular echo's which are good and I'm scanned every 6 months. I am very fortunate to say it hasn't spread anywhere else. Last week my Oncologist told me that I could stop it if I wanted but not sure what the future holds due to a lack of evidence and studies on Herceptin !. My husband and I talked at length about the pros and cons and decided not to stop. It is a very strange situation to be in considering I never thought id make it to 3 years let alone 8 !!!. Is there anyone out there in the same boat as I am????","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43760_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20314":{"__typename":"User","id":"user:20314","uid":20314,"login":"Merv","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2017-09-08T20:52:15.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/userpics/124/p6QRIDW7AORK4.jpeg"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20314"},"ModerationData:moderation_data:43759":{"__typename":"ModerationData","id":"moderation_data:43759","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43759":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20314"},"id":"message:43759","revisionNum":1,"uid":43759,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43759"},"body":"Thanks @Silba I'll give it a go. All the best.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"46","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-01-14T01:21:27.000-08:00","lastPublishTime":"2020-01-14T01:21:27.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43759","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"46","rawBody":"Thanks @Silba I'll give it a go. All the best.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43759_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:21388":{"__typename":"User","id":"user:21388","uid":21388,"login":"Silba","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-09-27T19:23:25.000-07:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/legacyfs/online/avatarstock/pO0EKDXAVV9VI.png"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:21388"},"ModerationData:moderation_data:43758":{"__typename":"ModerationData","id":"moderation_data:43758","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43758":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21388"},"id":"message:43758","revisionNum":1,"uid":43758,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43758"},"body":"@Merv Hi,
Try fresh pineapple a few pieces every day works wonders in getting the piping flowing , mango works well too.
Good Luck ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"144","kudosSumWeight":0,"repliesCount":0,"postTime":"2020-01-13T17:27:51.000-08:00","lastPublishTime":"2020-01-13T17:27:51.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43758","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"164","rawBody":"@Merv Hi,
Try fresh pineapple a few pieces every day works wonders in getting the piping flowing , mango works well too.
Good Luck ","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43758_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:22384":{"__typename":"User","id":"user:22384","uid":22384,"login":"OspreyBy","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2019-12-12T07:08:38.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-9.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:22384"},"ModerationData:moderation_data:43757":{"__typename":"ModerationData","id":"moderation_data:43757","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43757":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22384"},"id":"message:43757","revisionNum":1,"uid":43757,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43757"},"body":"Thank you Arpie for the welcome. I am glad I have joined in with this group. Gives me some comfort to know there are others out there as well. I have had contact with one other person in my home town who also has metastatic BC, I actually knew her from our childrens school and she was a great and pro active person to catch up with. I am from Bunbury WA.","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-12-14T07:38:34.000-08:00","lastPublishTime":"2019-12-14T07:38:34.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43757","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"355","rawBody":"Thank you Arpie for the welcome. I am glad I have joined in with this group. Gives me some comfort to know there are others out there as well. I have had contact with one other person in my home town who also has metastatic BC, I actually knew her from our childrens school and she was a great and pro active person to catch up with. I am from Bunbury WA.","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43757_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"User:user:20667":{"__typename":"User","id":"user:20667","uid":20667,"login":"arpie","biography":null,"registrationData":{"__typename":"RegistrationData","status":null,"registrationTime":"2018-01-13T01:35:16.000-08:00"},"deleted":false,"email":"","avatar":{"__typename":"UserAvatar","url":"https://onlinenetwork.bcna.org.au/t5/s/nkyiu94732/m_assets/avatars/default/avatar-8.svg?time=0"},"rank":{"__ref":"Rank:rank:39"},"entityType":"USER","eventPath":"community:nkyiu94732/user:20667"},"ModerationData:moderation_data:43756":{"__typename":"ModerationData","id":"moderation_data:43756","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43756":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:20667"},"id":"message:43756","revisionNum":1,"uid":43756,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43756"},"body":"Welcome to the blog, @OspreyBy ... sorry to see you here, but there is a wealth of info here and people who ‘get it’ and able to offer support and advice in many situations. That’s a bugger about your lungs :(
where abouts are you (town or city name)? Members may know of specific services available to your area.
Good on you for keeping your sense of humour - god knows we need it! We have a couple of humourous posts (including a Chrissy one) that should give you a laugh. Feel free to add any of your own xx
Good luck with the colonoscopy ... I had one a few months back after a bleed ... alll good.
take care xxxx","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"208","kudosSumWeight":0,"repliesCount":0,"postTime":"2019-12-12T14:39:04.000-08:00","lastPublishTime":"2019-12-12T14:39:04.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43756","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"697","rawBody":"Welcome to the blog, @OspreyBy ... sorry to see you here, but there is a wealth of info here and people who ‘get it’ and able to offer support and advice in many situations. That’s a bugger about your lungs :(
where abouts are you (town or city name)? Members may know of specific services available to your area.
Good on you for keeping your sense of humour - god knows we need it! We have a couple of humourous posts (including a Chrissy one) that should give you a laugh. Feel free to add any of your own xx
Good luck with the colonoscopy ... I had one a few months back after a bleed ... alll good.
take care xxxx","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:43756_1"},"latestVersion":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[]},"ModerationData:moderation_data:43755":{"__typename":"ModerationData","id":"moderation_data:43755","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"ForumReplyMessage:message:43755":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:22384"},"id":"message:43755","revisionNum":1,"uid":43755,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:living-with-metastatic-breast-cancer"},"parent":{"__ref":"ForumTopicMessage:message:43725"},"conversation":{"__ref":"Conversation:conversation:43725"},"subject":"Re: long term herceptin for bc mets....","moderationData":{"__ref":"ModerationData:moderation_data:43755"},"body":"Hello, This is my first time on this site. I was diagnosed in February this year, so have had right breast masectomy, in April started chemo for 18 weeks and herceptin and then radiation. I am now on three week herceptin. Had most of my right lymph nodes out and it has spread into my lungs. I am feeling pretty great but have now lost all my iron so am feeling pretty washed out, my oncologist today has put me down for a colonoscopy to see if that is where I am loosing blood that is affecting the iron levels in my blood. I told him it was probably all the blood tests I have been having, but he didn't see the humor in that. Love to hear that there are so many of you that have had long term success with herceptin treatment. ","body@stripHtml({\"removeProcessingText\":false,\"removeSpoilerMarkup\":false,\"removeTocMarkup\":false,\"truncateLength\":200})@stringLength":"203","kudosSumWeight":1,"repliesCount":0,"postTime":"2019-12-12T07:21:49.000-08:00","lastPublishTime":"2019-12-12T07:21:49.000-08:00","metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","placeholder":false,"originalMessageForPlaceholder":null,"isEscalated":null,"solution":false,"entityType":"FORUM_REPLY","eventPath":"community:nkyiu94732board:living-with-metastatic-breast-cancer/message:43725/message:43755","replies":{"__typename":"MessageConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"readOnly":false,"editFrozen":false,"body@stringLength":"735","rawBody":"Hello, This is my first time on this site. I was diagnosed in February this year, so have had right breast masectomy, in April started chemo for 18 weeks and herceptin and then radiation. I am now on three week herceptin. Had most of my right lymph nodes out and it has spread into my lungs. I am feeling pretty great but have now lost all my iron so am feeling pretty washed out, my oncologist today has put me down for a colonoscopy to see if that is where I am loosing blood that is affecting the iron levels in my blood. I told him it was probably all the blood tests I have been having, but he didn't see the humor in that. Love to hear that there are so many of you that have had long term success with herceptin treatment. 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