Liver mets - treatment options
Hi everyone, I was dx Stage IV in Sep 2016 with Mets to the Omentum and bones (spine, pelvis). This was 7 years after my initial diagnosis during which time I had been on tamoxifen. So I was put on af...
Forum Discussion
@maggie001
I too have liver and spine mets, no diabetes thank goodness,first things first I would wait until I see the oncologist and have a long list of questions ready to ask, also a good idea to have someone with you as an extra pair of ears who can write notes, who is looking after your diabetes just your gp or is your oncologist involved in this or are you seeing a specialist, I was diagnosed with stage 4, 4 years ago, no early breast cancer just stage 4 liver and spine and 3 tumours in my left breast,chemo started straight away, and since then tumours in left breast GONE but mets in liver and spine still there, I am on my 6th line of treatment, like you I was also on affinitor and exemestane{aromosin} this lasted for 15 months,at the moment I am on a oral chemo drug called Xeloda and also have been having xgeva injections monthly which are now every 6 weeks,the xeloda has reduced my tumours from 6 in the liver to 2 but I still have numerous small ones in my spine,
and when the xeloda stops I will be put on something else.
November the 2nd is not far away,so be armed and ready with your list of questions,do you have a McGrath Breast Care nurse? if you are rural you can check their website to find the nearest one to you, also are your gp and oncologist communicating with one another as you have two health issues they need to be aware of what the other is doing in terms of your medication,waiting for results is hard, we all know that but once you have sat down with your oncologist and put all your concerns to him and received the answers you will be in a better place as to where you go from here,sorry I have no answers re the diabetes thats best answered by your health professionals,
well, its a beautiful day outside in country SA, so better get on and do some of those pesky domestic duties,{better get dressed first!} I dont work thank goodness I am retired, which helps in terms of coping with this pesky disease,
so sorry that you have had to join our "special club" but we are all here to help and support one another,
hugs wendy55
I too have liver and spine mets, no diabetes thank goodness,first things first I would wait until I see the oncologist and have a long list of questions ready to ask, also a good idea to have someone with you as an extra pair of ears who can write notes, who is looking after your diabetes just your gp or is your oncologist involved in this or are you seeing a specialist, I was diagnosed with stage 4, 4 years ago, no early breast cancer just stage 4 liver and spine and 3 tumours in my left breast,chemo started straight away, and since then tumours in left breast GONE but mets in liver and spine still there, I am on my 6th line of treatment, like you I was also on affinitor and exemestane{aromosin} this lasted for 15 months,at the moment I am on a oral chemo drug called Xeloda and also have been having xgeva injections monthly which are now every 6 weeks,the xeloda has reduced my tumours from 6 in the liver to 2 but I still have numerous small ones in my spine,
and when the xeloda stops I will be put on something else.
November the 2nd is not far away,so be armed and ready with your list of questions,do you have a McGrath Breast Care nurse? if you are rural you can check their website to find the nearest one to you, also are your gp and oncologist communicating with one another as you have two health issues they need to be aware of what the other is doing in terms of your medication,waiting for results is hard, we all know that but once you have sat down with your oncologist and put all your concerns to him and received the answers you will be in a better place as to where you go from here,sorry I have no answers re the diabetes thats best answered by your health professionals,
well, its a beautiful day outside in country SA, so better get on and do some of those pesky domestic duties,{better get dressed first!} I dont work thank goodness I am retired, which helps in terms of coping with this pesky disease,
so sorry that you have had to join our "special club" but we are all here to help and support one another,
hugs wendy55