Kisqali on PBS, very few will get it.
I logged in today to share a couple of community
services I have been using in my area and was deeply concerned about the tone
of conversation coming from disgruntled members surrounding the availabi...
Forum Discussion
Hi @Karen_C,
so lovely to hear from you and what an amazing statement you have written,yes it has been hard to see some of the negative comments that have been written lately, I put a post up myself,only to say how complicated this whole situation is,and I dont get all the fine print, I was always aware right from the beginning that either of these drugs if put on the pbs would be for first line treatment only, I put my faith in my Oncologist and know that he will be doing everything he can
to prolong my life,these are the cards we are dealt with and we have to take a certain responsibility for that, BCNA have done a fantastic job advocating for us, I will keep on keeping on and like you I do count my blessings and am grateful for everything I have, anger achieves nothing, I dont have time for it, I have just returned from my first visit with an exercise physiologist, and enjoyed it, I go again next week,like you as well, I am doing everything I can in my power to keep myself well, happy and stress free, I can now go to bed and wake up in the morning and truthfully say that my diagnosis is NOT the first thing I think about,its taken 5 years, and a lot of help and support along the way but I am in a good place at the moment,well at least a good a place as you can be with this disease, life is for living, and thats exactly what I am doing,I firmly believe that if your mind is in a good head space, the rest will follow, I have down days thru ill health but I do not feel guilty any more about that, I have a "down but not out day",get it over and keep going, I live life in the slow lane now, and I rather like it,
keep well,
wendy55
so lovely to hear from you and what an amazing statement you have written,yes it has been hard to see some of the negative comments that have been written lately, I put a post up myself,only to say how complicated this whole situation is,and I dont get all the fine print, I was always aware right from the beginning that either of these drugs if put on the pbs would be for first line treatment only, I put my faith in my Oncologist and know that he will be doing everything he can
to prolong my life,these are the cards we are dealt with and we have to take a certain responsibility for that, BCNA have done a fantastic job advocating for us, I will keep on keeping on and like you I do count my blessings and am grateful for everything I have, anger achieves nothing, I dont have time for it, I have just returned from my first visit with an exercise physiologist, and enjoyed it, I go again next week,like you as well, I am doing everything I can in my power to keep myself well, happy and stress free, I can now go to bed and wake up in the morning and truthfully say that my diagnosis is NOT the first thing I think about,its taken 5 years, and a lot of help and support along the way but I am in a good place at the moment,well at least a good a place as you can be with this disease, life is for living, and thats exactly what I am doing,I firmly believe that if your mind is in a good head space, the rest will follow, I have down days thru ill health but I do not feel guilty any more about that, I have a "down but not out day",get it over and keep going, I live life in the slow lane now, and I rather like it,
keep well,
wendy55