Hi @LinLin - welcome to the online forum !
As you can see from all the responses it is a great place to ask questions (lots if you need to) and to get various updates on how everybody can react differently even though we may be taking identical treatment. You will quickly understand that even though the medication may be the same, just like our bodies, reactions and side effects can differ from one person to the next.
I agree with some of the other ladies that one of the first steps is to get in contact with a breast care nurse. Whichever hospital or cancer care centre you are seeing your specialist at may have a breast care nurse situated onsite or perhaps you could find out online if there is a centre close by. Maybe one of our great admin members like @Ann-Marie_BCNA could direct you to a link to find one near you.
I would also ask some questions regarding radiotherapy for the bony mets (you mentioned several spots in the bones) perhaps this is also an option for you ? As @Cate64 mentioned above, her last bone scan revealed that her bone mets are stable with no new tumours (my last bone scan also showed a similar result although I am having a 6 monthly check-up bone scan this Friday as my tumour markers have been rising).
Next time you have an appointment scheduled with your oncologist take a list of questions that you could ask - perhaps after seeing some of the responses from our fab forum ladies !!
Best wishes xxx
