Is anyone taking Ibrance/Palbociclib?

Hi, I understand your frustration COMPLETELY! and good for you re all your hard work to try and get Palbo on the PBS, BCNA have tried very hard on our behalf for this to happen, unfortunately at this stage the only breakthrough was that those ladies who had been accessing the drug overseas at a cost of $10.000 per month can now receive this drug free of charge,these ladies had paid in excess of $100.000 over the course of time, so very happy for them, HOWEVER that leaves a lot of us in a position that we can access it BUT at a cost of $5000. per month unless we meet the criteria necessary to receive the drug, which begs the question where to now, it would be fantastic if it was to be put on the PBS in November, but I just will not hold my breath, are there any alternatives for you? what does your oncologist say? so many questions, and no real answers,I am on a oral chemo, but it does have side effects as do most of the others, what treatment are you on at the moment?ringing the cancer council may help,it sounds like you have a lot of questions that need answers,sorry I cant be of more help, do you have a McGrath Breast Care nurse, they are a great advocate for women with breast cancer,I am 4 years post diagnosis of metastatic breast cancer I have mets in my liver and spine,let us know if we can help with anything , there is help out there its a matter of navigating you way around, easier said than done,
wendy55