Hi Sam09 - I'm up to Herceptin infusion no. 89 (x3weekly since Aug. 2011) and I've recently changed from Anastrozole to Exemastane which are both aromatose inhibitors. Throughout this time I have had side effects for which both oncologist and GP have no explanation. In short, 'take panadol frequently'. I won't give the details because my previous posts give information of pain experiences.
I recently had an infection with two bouts of convulsions in the one night. When I did a check-up with my GP a few days later he sent me off to emergency immediately (My husband drove). They did a CT scan and found a 'lesion' in my head. The consultant was very clear that it was not on the brain. I had an MRI and the diagnosis is a benign haemangioma and no threat. It was almost three weeks from the original scan to MRI results - a tough time.
Based on my experience, I agree with iserbrown, and strongly suggest an MRI even if the symptoms have stopped. Prior to seeing GP or ONC put your symptoms and locations, eg, 'above left eye', in writing as a memory aid or take a friend who knows all the details of your symptoms. Agree about the ban on Dr Google! xBeryl
