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Vix's avatar
Vix
Member
9 years ago

First post in a long time

Hi everyone!
I've been busy riding the mets rollercoaster nonstop. July 2016 medical oncologist tells me my ALP level is elevated. I was still working in a very stressful & demanding job 4 days a week. I noticed I had been tired but so had my co-workers as we were under so much pressure & running at half staff. Mentioned to oncologist I had a tingle in my bottom lip on the right side. She is so proactive (love her approach so much) she ordered head MRI immediately, which found a tumour 4.5cm x 5cm behind my left eye. Off the to neurosurgeon, more MRIs/scans & 6hr surgery 3 days later to remove tumour, surgeon got clear margins. Thankful I responded well, no issues or pain, text book recovery. 10 sessions head stereotatic radiotherapy followed, then Abraxane chemo started, once a week for 3 weeks, then a week off. Head MRI checkup December which showed 3 more spots, I was more frustrated than upset, spots only around 2-3mm. Proactive approach and did one 50 minute session of head Stereotatic Radiotherapy. I tell you 50mins locked in the head mask was so traumatic. It I did it, tears and all! Still doing chemo, and will be for a while. Tumour Markers in the 30s which is lowest they been for years & still slowly decreasing (diagnosed with bone mets 2013 & mets contained to bone until brain tumour). As you all know some days are emotionally tough but nearly most of the time I remain positive & focused on doing what I have to do right now and wake up grateful everyday. Early March next head MRI so I'm sure there will be a few anxious moments. I still am not allowed to drive, get fatigued often from chemo & miss work. Cancer is such a cruel and unfair disease but I will keep jumping every hurdle placed in front of me and jump them high. I will never ever ever give up!

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